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By Diane Talbert, a U.S. Pain Foundation advocate

I’m a “baby boomer,” and I’ve experienced psoriatic arthritis for over 25 years. It’s hard to explain what it’s like to be tired all the time or feel  pain 24 hours a day. The absurd part is that it doesn’t even bother me anymore. I just take my pain pills and go about my day. There are times I do face daily challenges and I know I’m not alone with this.

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Have you ever wanted to find a way to better communicate with your doctor, get the most out of your visits, and maximize your treatment plan?

If yes, please join us this Thursday, June 13, at 7 pm EST for an intimate conversation between neurologist and headache specialist Abby Chua, DO, and patient advocate Katie Golden. Dr. Chua and Katie will discuss what patients and doctors can learn from one another, and offer tips for interacting.

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Photo courtesy of Shawn Dickens.

Kids who live with chronic pain have same desire as anyone else their age: to feel understood, connected, and supported. Attendees at the second Pediatric Pain Warriors retreat, held over Memorial Day weekend in San Antonio, TX, experienced all this and more. The retreat included 90 kids with pain and their family members. (View a slideshow from the weekend.)

The weekend kicked off with a welcome dinner, which included a surprise visit from former Los Angeles Chargers linebacker Charmeachealle (Mike) Moore. On Saturday, children and their family members were treated to an education day with speakers covering topics from virtual reality for pain to medication safety. On the final day of the weekend, everyone headed to Morgan’s Wonderland, a handicapped-accessible theme park, for some well-deserved fun in the sun. Founded in 2010, the park admits anyone with a special need free of charge, no questions asked.

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In time for Migraine & Headache Awareness Month, U.S. Pain Foundation has released its third edition of the INvisible Project focusing on headache and migraine diseases. The publication depicts the reality of life with pain, and why people living with headaches diseases need and deserve more help, treatment options, and research. It also serves as an inspiration to those living with the disease, offering hope and resources.

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Migraine, headache, and cluster diseases affect more than 38 million Americans. To increase understanding and empathy for those with these disorders, U.S. Pain Foundation and CHAMP (the Coalition For Headache And Migraine Patients) need your help during National Migraine & Headache Awareness Month (#MHAM). The theme this year is #SowingtheSeeds.

MHAM began June 1, so jump in as soon as you can! You can get involved in the following ways:

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The new report on pain management, mandated by Congress and finalized on May 30, is an important milestone for people with pain. The report emphasizes the need for access to affordable, multidisciplinary care, and urges an individualized approach to pain management–instead of broad one-size-fits-all limits and policies.

But how do we move it forward from a piece of paper to actual change?

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By Janet Jay

Finding a new doctor or other medical professional can be incredibly daunting– not only do you want to find someone good, but you have to also factor in cost, insurance, distance, compatibility, background, and dozens of other factors.

Luckily, knowing some basic search strategies can make your quest much easier and less stressful. Don’t let the pressure of trying to find a doctor keep you from getting treatment. You deserve a good medical team and are within your rights to keep looking until you find the right fit!

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For immediate release
Contact: Casey Cashman at 908-442-3257 or pediatricpainwarrior@uspainfoundation.org

San Antonio, TX (May 20, 2019)—Childhood is supposed to be carefree. But for the millions of kids navigating the challenges of living with painful conditions like fibromyalgia or juvenile arthritis, that’s not necessarily the case.

To help support children with chronic pain and their families, on May 24 to 27, the U.S. Pain Foundation will host its second Pediatric Pain Warriors Retreat at Morgan’s Wonderland in San Antonio, TX.

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The new report on pain management, mandated by Congress, has the potential to improve pain care for millions of Americans. But how do we move it forward from a piece of paper to actual change?

To learn how you can help, please join us this Wednesday, May 22, at 12 pm EST for a special webinar with Cindy Steinberg, U.S. Pain’s National Director of Policy and Advocacy, and the only patient and patient advocate on the task force that created the report.

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