Each year, U.S. Pain engages in a month-long educational campaign aimed at providing helpful information and resources to people living with pain and their caregivers. To honor the young pain warriors who have had to find their new “normal” at an early age, U.S. Pain Foundation is dedicating this year’s KNOWvember campaign to pediatric pain warriors.
Through virtual offerings such as webinars, Twitter chats, and Facebook live events, along with daily facts, the pain community will be given the chance to engage with leading experts, nonprofit organizations, children with chronic illness, and others passionate advocates.
#PainWarriorsUnite was one of U.S. Pain’s most successful Pain Awareness Month campaigns to date! Ambassadors, advocates, and volunteers worked hard all month to create awareness on behalf of pain warriors across the country. Initiatives included the 30-Day Social Media Challenge, Daily Partner Pain Facts, proclamations, Light up the Landmarks, Beautify in Blue, awareness tables, fundraisers, and educational webinars.
U.S. Pain Foundation’s Director of State Advocacy and Alliance Development Shaina Smith has been appointed to serve on a pain management design group put together by Connecticut’s Office of Health Strategy (OHS).
The Primary Care Modernization initiative is intended to enable primary care providers to expand and diversify their care teams and provide more flexible, non-visit-based methods for patient care, support, and engagement. The design process will result in a proposed program model that details new care delivery capabilities for Connecticut’s primary care practices and payment model options that support those capabilities.
The Senate and House have agreed to a compromise opioid bill HR 6, the SUPPORT Act, which has passed the House and is expected to pass the Senate this week and be signed into law by the President. This is the second big piece of legislation Congress has created to address the opioid crisis, with a total of 660 pages.
“The bill does include a number of positive provisions from a pain management perspective, but also continues a troubling pattern in recent legislation of penalizing the use of opioids for legitimate pain management,” said Cindy Steinberg, U.S. Pain National Director of Policy and Advocacy.
U.S. Pain’s educational resource website, Learn About Your Pain, has begun an update to provide more comprehensive information and support. As part of that update, the website will include additional patient resources, including videos from experts in the field and from patients living with the condition. The website’s re-boot has been made possible with a grant from Germany-based pharmaceutical company, Grunenthal.
The U.S. Department of Health and Human Services (HHS) Pain Management Best Practices Task Force convened its second public meeting on Sept. 25 and 26 in Washington, DC.
“The main purpose of the meeting was for the three task force subcommittees to present a high-level summary of their recommendations arrived at through working sessions held every week since the end of May,” says Cindy Steinberg, a task force member and U.S. Pain’s National Director of Policy and Advocacy. “Other goals were to hear input from high-level officials representing stakeholder government institutions, including HHS, Congress, the Centers for Medicare and Medicaid Services, the National Institutes of Health, the Department of Veterans Affairs, the Indian Health Service, and the Department of Defense. The task force also heard from the U.S. Surgeon General, patients living with chronic pain, and members of the public.”
Medical research is essential to advancing pain care. On Sept. 25, U.S. Pain members were treated to a webinar covering the ins and outs of medical research studies. The event, “Patient empowerment in clinical trials,” was presented by Lindsay Wahlstrom-Edwards, Director of Partnerships at Antidote, a digital health company that helps connect patients with clinical trial opportunities.
During her talk, Wahlstrom-Edwards explained the different types of clinical research and key terms, like “protocol” and “principal investigator.” She also talked about the importance of engagement. According to Wahlstrom-Edwards, approximately 80 percent of medical research is delayed or cancelled due to difficult enrolling participants.
The Ouchie app is successfully used by thousands of people to track and manage their chronic pain. It’s also a powerful platform for connecting with and getting support from fellow patients.
The team behind Ouchie recently created a new series that features the stories and perspectives of people living with chronic pain, including members of U.S. Pain. Download the app to learn more about members like Jason Schutz of the blog, “Ain’t No Shame in Chronic Pain,” who wrote a piece about the value of support groups. You can also find helpful tips and resources from clinical experts.
Patients with back pain in Delaware will have access to interdisciplinary pain care, following Gov. John Carney’s signing of Senate Bill 225.
The act develops a pilot program within the state employee health care plan that allows the use of massage therapy, acupuncture, and yoga to treat back pain. It also prohibits health plans from placing annual or lifetime limits on chiropractic and physical therapy visits.