The mission of U.S. Pain Foundation is to educate, empower, connect, and advocate for people living with chronic conditions that cause pain. As a 501 (c)(3) nonprofit organization dedicated to serving those who live with painful conditions and their care providers, U.S. Pain Foundation helps individuals find resources and inspiration.
Paul Gileno founded the Connecticut Pain Foundation in 2006 after a work injury led to severe pain and forced him to close his thriving catering business. What started as a small grassroots effort quickly grew, going national on Jan. 11, 2011 as the U.S. Pain Foundation. Since then, Gileno and his team of fellow pain warriors have developed U.S. Pain into the leading chronic pain patient advocacy organization in the nation. U.S. Pain currently has more than 90,000 members and offers dozens of resources, campaigns and events—including its flagship program, the INvisible Project— a magazine and gala that highlights the stories of people living with pain.
Current Facts and Statistics about U.S. Pain:
As of January 2017, U.S. Pain Foundation has:
- More than 90,000 members and 1,000 volunteers
- Presence in more than 960 offices of health care professionals nationwide
- Social media reach of nearly 225,000 followers combined on Facebook, Twitter and Instagram
- Partners with over 200 other patient, clinician and health care organizations
- Learn more about our 2016 efforts in our annual report.
Facts and Statistics about Chronic Pain:
Based on 2011 Institute of Medicine report, Relieving Pain in America:
- Chronic pain is typically defined as pain lasting longer than three months
- Chronic pain affects nearly 100 million Americans, not including children
- Severe chronic pain affects an estimated 17 million Americans
- Pain costs the nation up to $635 billion each year in medical treatments, disability payments and lost productivity
- Chronic pain is still widely underfunded, misunderstood and undertreated.
2016 – U.S. Pain Foundation 990 Tax Return – coming soon
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Founder and President
Paul Gileno is a strong force in the chronic pain awareness movement. His mission in life is to empower and support those living with pain. Having pain himself makes the issue of pain care a personal and public matter for him. After a work injury in 2003 left him living with degenerative disc disease, failed back syndrome and complex regional pain syndrome for over three years, Paul created U.S. Pain Foundation.
U.S. Pain is a 501(c)(3) nonprofit that exists to connect, inform, empower and advocate for the pain community. This grassroots organization continues to grow with over 90,000 members with representation in every state.
As the integral force behind the U.S. Pain Foundation team, Paul is determined to improve healthcare and make a difference. He believes that by exploring new ways to cope, those with pain can find personal answers that enable them to grow and live once more with meaning and purpose. Furthermore, he is committed to making sure the public better understands the tolls and trials those with pain endure. He validates pain and empowers the 100 million Americans suffering to become educated and proactive.
Striving to design programs that are informative and relevant to the pain community, he was the mastermind behind the pain warrior bracelet. This initiative unites, strengthens, validates and encourages the pain community to keep fighting for proper care. He was also one of the visionaries for the INvisible Project. The INvisible Project is a national campaign that illustrates the struggles and resilience of those with pain through photography and story. Additionally, he was instrumental behind the passing of Connecticut’s Act 11-169; legislation that has had a direct benefit on the medical care Connecticut residents living with chronic pain receive. The new law ensures that patients will have access to the medication that their doctor prescribes by putting limits on step therapy protocols instituted by insurance companies.
Besides his work with U.S. Pain, Paul is on the Advisory Board for PainPathways magazine. He also supports various organizations that raise awareness and fund research on behalf of the chronic pain community, as all endeavors shift perceptions about pain and motivate change. In May 2014, he was the recipient of the Unsung Hero Award for his stellar work in pain policy initiatives as well as his significant contributions to advance the social awareness of pain and suffering. Paul additionally received the “2015 Educator of the Year Award” from the American Society of Pain Educators (ASPE).
He resides in New York with his wife and two sons.