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Predicting and Preventing Acute-to-Chronic Pain: Research with Far-Reaching Effects

Usually, when an injury causes pain, the sensation is only temporary. You twist your ankle, it’s sore for a few days, then eventually the swelling goes down and you can walk normally again. But in some cases, that doesn’t happen, and an acute injury is only the...

Clinical Trials: A Way for Patients to Contribute to Pain Research

Clinical trials offer concrete mechanisms for individuals living with pain to contribute to the landscape of pain research — they're one of the most significant ways patients can play a role in creating hope for future pain relief. But what exactly are clinical...

How the NIH HEAL Initiative is addressing unmet needs of people with chronic pain

While chronic pain is a very individual problem, it also costs society at large so much: lost hours in productivity, wasted dollars on ineffective treatments, strain on the health care and insurance systems, and the collective impact on people living with pain in the...

Medically Complex? Tips to Prepare for an Emergency or Planned Hospitalization

I live with two incurable conditions that have led to many experiences in the hospital. Along the way, I have learned that, as a medically complex person, it is best to prepare for a planned or emergency hospital stay. I highly recommend taking time to create a...





2022 annual report is now available

2022 annual report is now available

Chronic pain is vastly under-recognized, underfunded, and under-treated when considering its significant impact on American lives. Research, treatment options, and support for those affected individuals still lag behind other major diseases.  This...

Regaining Confidence After a Cardiac Event

Regaining Confidence After a Cardiac Event

Life has a wonderful way of rapidly changing from appearing to be running smoothly to suddenly feeling out of control. This drastic change in the flow of my life recently happened, causing me to have to wonder how I could live without fear again. ...

What Happens if My Caregiver Passes Before Me?

What Happens if My Caregiver Passes Before Me?

There are moments in my daily life when I get a feeling of anxiety and potential loss, wondering how I could possibly get by without my husband, who is also my caregiver. We are both now in our 70s, living with incurable conditions. Like all...

Knowledge Produces Education and Compassion

Knowledge Produces Education and Compassion

Approximately two years ago, I was diagnosed with Parkinson’s disease. Up to that point in my life, I'd experienced 73 years of relatively good health. This diagnosis was frightening, to say the least. While I possess some general knowledge of the...