Throughout June as National Headache and Migraine Awareness Month (MHAM), the U.S. Pain Foundation and fellow patient organizations focused their efforts on educating patients and the public about the realities of life with headache diseases. (And even though it’s July, there are still a few opportunities to learn and take action!)
Launch of the INvisible Project: Migraine & Headache 4th Edition
The month kicked off with multiple launch parties for the newest edition of the INvisible Project, which highlights 10 patients and families coping with varying types of headache diseases ranging from cluster headache to new daily persistent headache. You can download the full PDF of the magazine or order print copies, free of charge, by visiting the INvisible Project website.
According to Tufts University, 37 percent of research sites do not meet their enrollment goals for scientific studies. But enrollment is critical to clinical research and uncovering potential treatment advances.
Jennie Latson, a 39-year-old from Houston, TX, has battled the pain and burden of migraine for more than 25 years. Her relentless quest to find relief led her to a clinical trial in August 2018, which changed her life.
June is Migraine and Headache Awareness Month (#MHAM)! A large percentage of our community lives with migraine and headache diseases, whether as the primary cause of their pain or a comorbidity.
Nationwide, headache and migraine diseases affect 47 million Americans. Despite their huge impact, these conditions are often overlooked and downplayed as “It’s just a headache.”
But we know it is far more than simply head pain. Headache and migraine diseases are complex, debilitating, and symptoms can affect your entire body.
In honor of Migraine and Headache Awareness Month, on June 24, Jaime Michele Sanders (aka The Migraine Diva) will lead a diverse panel of fellow INvisible Project participants in tackling the issue of health care disparities. Nim Lalvani (Executive Director of American Migraine Foundation), Isiah Lineberry (health policy exert and a caregiver for his wife and two daughters, who live with migraine), and LaQuinda Mccoy (a patient advocate for migraine and other diseases, and a former nurse) will share how discrimination and implicit bias has negatively impacted their access to appropriate medical treatment.
By: Mia Maysack
I have never said that mindfulness fixes or cures, that it is easy, looks the same for everyone, or that it should even be referred to by that term.
It would be incorrect of me to make the claim that anything erases discomfort and all symptoms attached to them. Yet instead of exploring this concept for themselves, many want to attack it or remain defensive without genuinely committing, as if tension assists them in feeling better than letting it go would.
In honor of Migraine and Headache Awareness Month, join us Wednesday for an honest conversation about cluster headache, the most painful disease known to man. Author Ashley Hattle and INvisible Project participant Joe McKay will share their personal experience and detail 10 things they wish everyone knew about cluster headache–also known as the “suicide headache.”
This event is free and open to the public.
U.S. Pain Foundation has released the INvisible Project: Migraine and headache diseases, 4th edition, just in time for Migraine and Headache Awareness Month, which is celebrated each June. The publication highlights 10 individuals living with headache and migraine diseases and includes articles from experts in the field.
By Angelica “Heidi” Brehm
Before my migraine disease caused me daily pain and disability, I was an elementary school teacher. I intentionally taught my students about people who shared their backgrounds, challenges, and differences who managed to dream big and accomplish amazing things. I integrated these role models throughout my curriculum because I believed it would increase my students’ success. So why did it take me so long to search for role models for myself? Why didn’t I seek out examples of people with migraine, chronic pain, or other life-altering challenges who lived successful lives? Maybe it’s because it was hard to believe that something so basic could have such a powerful effect on my own success.
U.S. Pain Foundation was busy in June with activities surrounding National Migraine & Headache Awareness Month (MHAM). In collaboration with member organizations of CHAMP (Coalition For Headache & Migraine Patients), awareness of headache diseases was elevated.
U.S. Pain hosted two interactive web events, which can be viewed by following the links:
- “Overcoming a brain in pain: Advice from migraine strategist Lindsay Weitzel, PhD,” and
- “What migraine doctors and patients can learn from one another: A conversation with Abby Chua, DO, and Katie Golden.” (Must register to view)
Ambassadors worked to obtain proclamations from their local governments to recognize June as National Migraine & Head Awareness Month. U.S. Pain also helped promote Shades for Migraine, attended the Danielle Byron Henry Foundation’s “Shine Her Light” event in Salt Lake City, and participated in two of Chronic Migraine Awareness, Inc’s “Fact-A-Day” social media posts, and partnered on the start of their newest program, Triage Kits.