The Pediatric Pain Warriors program is excited to announce My Marathon, a brand-new fundraising initiative. Knowing that every day can feel like a marathon when you are battling chronic pain, the goal of the fundraiser is to show that while everyone in our community is so different, we all find ways to conquer our obstacles.
“Because marathons are 26.2 miles, we are asking our pain warriors to do 26 movement activities in September,” says Casey Cashman, director of the Pediatric Pain Warriors program. “Marathons can range from walking 26 steps daily for 26 days to doing 26 minutes of physical therapy for 26 days. The possibilities are endless — you can incorporate yoga, swimming, dancing, martial arts, or whatever you prefer. Each person’s chronic pain journey is different, so each person’s marathon will be unique.”
The Pediatric Pain Warrior Program’s virtual retreat, which began in May, has been busy providing education, interaction, and social events for kids and their families. Among the many activities is an awareness campaign featuring, “Pediatric Pete the Penguin Warrior,” an adorable mascot who has begun making his way throughout the United States.
So far, Pete has traveled to 23 states as well as British Columbia, Canada. Pete’s adventures with different pediatric pain warriors have been documented and can be seen in the slideshow below.
In an effort to create a sense of community during a time of isolation and uncertainty, the Pediatric Pain Warrior Program held a virtual talent show on March 29 via video conference call.
A total of 13 performers showcased their talents, including singing, dancing, archery, and art.
“It was so great to see these kids connect with one another in such a positive way! You could see how empowering it was for these kids to share their talents with each other and to have a platform to do so,” says Beth Young, whose daughter, Emma Parcells, participated in the talent show. “When I heard my daughter sing and be happy, it made me cry. In these uncertain times for us all, I watched these kids coming together and supporting each other in such a positive way. It was the best distraction from what we have to face every day.”
U.S. Pain is excited to announce a new program, Pediatric Pain Warriors, dedicated to serving kids with pain and their families. The program will consist of additional pediatric editions of the INvisible Project, pediatric-focused educational events like Take Control of Your Pain Days, support groups, weekend retreats, scholarships to attend a summer camp designed for kids with chronic conditions, and online resources.
U.S. Pain Foundation is proud to announce it will officially launch a Pediatric Pain Warrior Program in 2018.
“This program’s goal is to ensure that no child feels like he or she is fighting this journey alone,” says Paul Gileno, president and founder of U.S. Pain. “To do that, we will provide resources for the pain warrior as well as his or her family, offer support online as well as in-person, give families a safe and secure place to share stories, and keep the community up-to-date on events and awareness campaigns.”