The INvisible Project: Migraine second edition was published at the end of May, just in time for the start of Migraine and Headache Awareness Month. The magazine features the stories and photos of 10 individuals living with migraine and headache disorders, building on the first INvisible Project: Migraine edition that was released last year.
“We are so thrilled to once again highlight the challenges and triumphs of people living with migraine and headache disorder,” says Nicole Hemmenway, interim CEO of U.S. Pain. “This population is too often overlooked and undertreated.”
U.S. Pain Foundation is teaming up with Coalition For Headache And Migraine Patients (CHAMP) for National Migraine & Headache Awareness Month (MHAM) this June. If interested in taking part, please respond quickly to ensure your efforts are completed in June.
Here are three ways you can get involved:
MHAM Proclamation: Submit a request for a ceremonial proclamation from your state or local representatives. We’ll provide the template, instructions and support. Interested? Send an email to email@example.com for more details and please include the state in which you live. Thanks to Ambassador Jeannette Rotondi for her work on this project.
U.S. Pain will hold its third annual Real Hope, Real Heroes Gala: A celebration of real-life heroes on June 2 in Scottsdale, AZ. The goal of the evening is to shed light on the invisibility of pain while also honoring amazing pain warriors. All proceeds go toward U.S. Pain’s programs and services.
This year, the gala will feature participants from the last two editions of the INvisible Project, which highlighted migraine disease and rheumatoid arthritis/rheumatoid disease respectively. The INvisible Project is a print magazine and website that highlights the bravery and perseverance of pain warriors through stories and photos.
On Feb.12 and 13, representatives from U.S. Pain Foundation proudly participated in Headache on the Hill (HOH) in Washington, DC. Now in its 11th year, HOH is an event that gathers patients, caregivers, and providers together to advocate on Capitol Hill on issues related to headache, migraine, and cluster diseases. This year marked the largest attendance with a total of over 140 advocates representing 40 states.
U.S. Pain was pleased to lead or participate in a variety of efforts and activities related to Migraine and Headache Awareness Month in June. Below is a slideshow of highlights from throughout the month.
As the flagship program of the foundation, the INvisible Project unveils the truth about what it means to live with pain and thrive despite it. In an effort to support disease-specific communities, the latest edition of the project focuses on migraine disease — coming out just in time for Migraine and Headache Awareness Month in June! (For information about getting involved with Migraine and Headache Awareness Month, check out this article from last month’s eNews.)
Currently, 36 million Americans are living with migraine disease; four million of them have chronic migraine, meaning they have 15 or more attack days per month. There are many different ways you can help spread awareness and stop the stigma of living with migraine disease during Migraine & Headache Awareness Month this June.
“By getting involved in June, you can help so many people dealing with this misunderstood, debilitating condition,” says Katie Golden, a California pain ambassador who has migraine disease. “Every little bit helps.”
If you’d like to get involved with U.S. Pain’s recognition of Migraine Awareness Month in June, please consider beginning the process now to obtain a proclamation in your state or town. Some government offices require several months of advanced notice. Here are the steps to take:
- In order to be considered as the State Migraine Awareness Month Leader for your region, you must first email Shaina Smith, director of state advocacy & alliance development, with the subject line “Migraine Awareness Month,” by April 30.
- If no one else has signed up prior to your request, you will be sent the official proclamation template to present to your governor. If someone has already signed up in your state, you will be encouraged to submit the request to your town/city government officials. Remember, the more exposure the proclamations receive at the local and state levels, the better!
- The template can then be emailed to your governor’s office through your state website. Contact requirements for towns and cities vary based on the municipality and its website capabilities. If a proclamation request email is not available, you may call your town leader’s office (mayor, first selectman, town council chair, etc.) or stop by his or her office and ask how to submit a proclamation for consideration. Shaina can provide support throughout the submission process.
- Once your state, city, or town has approved the request, you must again email Smith with the news and send her another email including a photo of the proclamation itself as soon as it is received. This is an essential part of the process that is necessary to highlight your accomplishment for the pain community on social media, websites, and at events.
By submitting the proclamation request to your state governor’s office and/or town officials, you are supporting the millions of Americans affected by migraine disease. We encourage you to get started today! If you have any questions, please contact Shaina.
Multiple pain warriors represented U.S. Pain during two important events in February: Rare Disease Day on Feb. 28 and Headache on the Hill on Feb. 13 to 14.
Headache on the Hill
On Feb. 13 to 14, U.S. Pain Foundation Advocate Katie Golden attended Headache on the Hill with members of Congress voicing the importance of appropriating funds under the Comprehensive Addition Recovery Act (CARA). Golden spoke of the importance of fully funding pain research for the National Institutes of Health under CARA alongside other patient advocates, neurologists, headache specialists, and patient caregivers.
Patients who live with headache and migraine have two key opportunities to raise awareness and advocate for themselves in the near future, first with Headache on the Hill on Feb. 13 and 14, and then with Migraine Awareness Month in June. While June may seem far off, those who are interested in participating by obtaining a Migraine Awareness Month Proclamation in their state or town should take action now; steps are listed below.