RESOURCES

Infographics and handouts

Download the PDF: Chronic pain facts

Download the PDF: Types of neuromodulation therapies

Download the PDF: Create your pain management plan

Download the PDF: What is telehealth?

Download the PDF: Questions to ask about spinal cord stimulation

Download the PDF: Safe dosing guide

Download the PDF: Our community demographics

Download the PDF: Understanding the federal report on pain

Download the PDF: Osteoarthritis patients’ unmet needs

Download the PDF: Neuromodulation myth vs. fact

Download the PDF: Guide to 504 and IEP

Download the PDF: Crafting an
op-ed or letter to the editor

Download the PDF: How to read OTC label

Interested in ordering print materials, free of charge?

INvisible Project magazines

Since 2010, U.S. Pain Foundation has published 15+ issues and distributed an estimated 100,000 copies of the INvisible Project magazine, featuring articles from experts and in-depth stories about real people’s experiences with chronic pain.

Additional resources

U.S. Pain has compiled a working list of external resources. These resources are provided for educational purposes only. U.S. Pain does not endorse or recommend the use of any particular product, medication, remedy, procedure or therapy. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your medical condition and appropriate treatment. If you are experiencing a health emergency, call 911 immediately. If you have a resource you think we should add, email contact@uspainfoundation.org.

General

Treatment, safety, and research

Emotional well-being and quality of life

Quality of life

General
WebMD: 11 Tips for Living With Chronic Pain
The Mighty: 15 Tips for Coping with Chronic Pain

Blogs
But You Don’t Look Sick
ChronicBabe
Golden Graine
The Mighty
Pathway to Mindfulness blog
Toni Bernhard

Support groups
Pain Connection 

mychronicpainteam 

Apps
branch 
My Chronic Pain Diary
WebMD Pain Coach

Art and writing programs
PainExhibit

Books on chronic pain
By patients and caregivers:
No, It Is NOT In My Head: The Journey of a Chronic Pain Survivor from Wheelchair to Marathon Nicole Hemmenway 
It Hurts Like Hell!: I Live With Pain — And Have A Good Life Anyway Ellen Lenox Smith 
Not Lying Down – How I Conquered Years of Pain to Triumph at the Finish Line Carole Staveley
Silent Courage: my lifelong journey through pain to wellness Mary Byrne Eigel
We’re In This Together: A Caregiver’s Story Rob Harris
Battle for Grace Cynthia Toussaint

By clinicians, researchers or other experts:
Conquer Your Chronic Pain: A Life-Changing Drug-Free Approach For Relief, Recovery, and Restoration Peter Abaci, MD
A Nation in Pain: Healing Our Biggest Health Problem  Judy Foreman
The Empowered Patient Julia Hallisy, MD
The Chronic Pain Solution by James Dillard MD, DC, CAc
The Pain Companion: Everyday Wisdom for Living With and Moving Beyond Chronic Pain Sarah Anne Shockley
Living Well with Pain and Illness: The Mindful Way to Free Yourself from Suffering
Vidyamala Burch
Take Charge of Your Chronic Pain Peter Abaci, MD
Pain Tracking – Your Personal Guide to Living Well with Chronic Pain  Deborah Barrett
Full Catastrophe Living: Using the Wisdom of Your Body and Mind to Face Stress, Pain, and Illness Jon Kabat-Zinn
The Power of Breath: The Art of Breathing Well for Harmony, Happiness, and HealthSwami Saradananda
The Relaxation and Stress Reduction Workbook Martha Davis and Elizabeth Robbins Eshelman
Wisdom to Wellness: Healing Your Emotional Sufferings so the Physical Healing Can Follow
Maureen Minnehan Jones
Confronting Chronic Pain Steven H. Richeimer, MD, with Kathy Steligo
Defeat Chronic Pain Now! Bradley S. Galer, MD, and Charles E. Argoff, MD

Sleep tips
Guide to sleep for people with disabilities
Pain and sleep

Travel tips

Insurance and finances

Financial assistance

Resources for specific populations

Individuals with disabilities

General
Disability Rights Advocates
A Guide to Disability Rights Laws
Business Ideas for People with Disabilities

Social security assistance
Disability Secrets: An Overview of Social Security Disability Insurance
Social Security Administration Benefits For People With Disabilities
10 Myths and Facts About Social Security Disability Insurance

Worker’s compensation
Worker’s compensation glossary
All Law: Tips for Making Sure Your Workers’ Compensation Claim is Paid
SimplyWorkComp: Claim adjusters’ best tips to avoid workers’ comp missteps

Assistive devices and technology support
Access for Athletes – Challenged Athletes Foundation’s (CAF) Flagship Program
Alternatives in Motion
American Sleep Apnea Association – CPAP Assistance Program
Compare Electric Wheelchairs
CHASA Orthotic Grants
EnergyUnited Foundation Round-Up Program
LifeNets – The Wheelchair Project
M.O.R.G.A.N. Project, Inc. – Pediatric Disability Equipment Exchange Program
My Gym Challenged America Foundation
Online Shopping For Consumers With Disabilities
Wheelchair Recycler

Car and home modifications
A Seniors Guide to Mobility Friendly Homes
Fiat Chrysler – DriveAbility Program
General Motors Mobility Reimbursement Program
Rebuilding Together – National Headquarters
Special Kids Fund, Inc.

Guide dogs and therapy animals
Assistance Dog United Campaign
Canine Companions for Independence
Canine Partners for Life – Service Dog Program
Doggie Does Good
Educated Canines Assisting with Disabilities
Equestrian Programs – Greenwell
Freedom Service Dogs of America
Helping Hands: Monkey Helpers for the Disabled
National Education for Assistance Dog Services (NEADS)
Paws With A Cause
Summit Assistance Dogs
Support Dogs, Inc. – Assistance Dogs
The Gift of Sunshine (TGOS) – The Hope Chest

Prostheses assistance
Bowman Limb Bank Foundation
Ellen Meadows Prosthetic Hand Foundation
Heather Abbott Foundation
Limbs for Life Foundation
Mending Limbs Organization
National Amputation Foundation – Medical Equipment Give-A-Way Program 

Resources by disease state

Migraine and headache disease

Migraine & Cluster Organizations

 Alliance for Headache Disorders Advocacy: allianceforheadacheadvocacy.org

American Academy of Neurology: aan.com

American Headache Society: americanheadachesociety.org

American Interventional Headache Society: interventionalheadache.net

American Migraine Foundation: americanmigrainefoundation.org

 Association of Migraine Disorders: migrainedisorders.org

CHAMP – Coalition For Headache And Migraine Patients: headachemigraine.org

Cluster Headache Support Group: chsg.org

Clusterbusters: clusterbusters.org

Danielle Byron Henry Migraine Foundation 

 Migraine Research Foundation: migraineresearchfoundation.org

National Headache Foundation: headaches.org

National Institute of Neurological Disorders and Stroke (NINDS) – Migraine Information: ninds.nih.gov/Disorders/All-Disorders/Migraine-Information-Page

 The Headache & Migraine Policy Forum: headachemigraineforum.org

 

Migraine & Cluster Support and Information

 Chronic Migraine Awareness, Inc: facebook.com/ChronicMigraineAwareness/

Clusterbusters: https://www.facebook.com/clusterbusters/

Cluster Headaches Facebook Support Group: facebook.com/groups/17789934480/

 Cluster Headaches Worldwide Support Group: clusterheadaches.com

Headache on the Hill: allianceforheadacheadvocacy.org/headache-on-the-hill/

HealthCentral: healthcentral.com/migraine

Healthline: healthline.com/health/migraine

Migraine.com: migraine.com

Migraine Again: migraineagain.com

MigraineDisease.com: migrainedisease.com

Migraine Support: facebook.com/SupportForMigraines

 Miles for Migraine: milesformigraine.org

Move Against Migraine: facebook.com/groups/MoveAgainstMigraine

MyMigraineTeam: mymigraineteam.com

 Out of My Head Film: outofmyheadfilm.com

 The Migraine World Summit: migraineworldsummit.com 

Migraine Blogs

Adventures of a Spoonie Mom: adventuresofaspooniemom.com

 Ashley Hattle: ashleyhattle.com

Chronic Migraine Awareness: chronicmigraineawareness.blog

Dawn C. Buse, PhD: dawnbuse.com

Golden Graine: goldengraine.com

 Her Migraine Life: facebook.com/Her-Migraine-Life-330896290399035/

Making of a Brave Man: facebook.com/makingofabraveman

Migraine Diva: themigrainediva.blogspot.com

 Migraine Ninja: migraine.ninja

Migraine Warrior: migrainewarriorblog.wordpress.com

The Daily Headache: thedailyheadache.com

 

Headache Tracking Tools, Online Diaries and Assessments

BonTriage: bontriage.com

 Curelator: curelator.com

iHeadache: iheadache.com

Migraine Buddy: migrainebuddy.com

MigrainePal: migrainepal.com

MigrainePro: migrainepro.com

Branch health: branch.health

Patients Like Me: patientslikeme.com

Osteoarthritis

Osteoarthritis Groups

 Versus Arthritis: versusarthritis.org

 Arthritis Foundation: arthritis.org

 Arthritis National Research Foundation: curearthritis.org

 Arthritis Research UK: arthritisresearchuk.org

 Global Alliance for Musculoskeletal Health: bjdonline.org

 Osteoarthritis Action Alliance: oaaction.unc.edu

 Osteoarthritis Research Society International: oarsi.org

 United States Bone and Joint Initiative: usbji.org

 

Osteoarthritis support and information

 Arthritis-health: arthritis-health.com

 CreakyJoints: creakyjoints.org

 HealthCentral – Osteoarthritis: healthcentral.com/osteoarthritis

 Movement Is Life: movementislifejourney.com

 Osteoarthritis and Sport/Exercise Facebook page: bit.ly/oasportsFB

 OA Knee Pain: oakneepain.co.uk

 Oh My Arthritis: ohmyarthritis.com

 Start Moving Start Living: startmovingstartliving.com

Rheumatoid arthritis and disease

 RA/RD Groups

 American College of Rheumatology: rheumatology.org

 Arthritis Foundation: arthritis.org

 Arthritis National Research Foundation: curearthritis.org

Johns Hopkins Arthritis Center: hopkinsarthritis.org

 Kids Get Arthritis, Too: kidsgetarthritistoo.org

 National Institute of Arthritis and Musculoskeletal and Skin Diseases: bit.ly/NIAMSorg

 Rheumatoid Patient Foundation: rheum4us.org 

 

RA/RD Support

 Arthritis Introspective: arthritisintrospective.org

 Creaky Joints: creakyjoints.org

 Healthline: healthline.com/health/rheumatoid-arthritis

 RA HealthCentral: healthcentral.com/rheumatoid-arthritis

RheumatoidArthritis.net: rheumatoidarthritis.net

Rheumatoid Arthritis: rheumatoidarthritis.org

MyRATeam: myrateam.com

 

RA/RD Blogs

All Flared Up: allflaredup.wordpress.com

Arthritic Chick: arthriticchick.com

From This Point Forward: fromthispointforward.com 

RA Adventure Rider: midnightflier.blogspot.com

RA Warrior: rawarrior.com

RheumaBlog: rheumablog.me

Rheumatoid Arthritis Guy: rheumatoidarthritisguy.com

 

Tracking Tools, Online Diaries and Assessments

 ArthritisPower: arthritispower.org/app

 Branch Health: branch.health

Complex regional pain syndrome

CRPS organizations

International Research Consortium on CRPS http://www.crpsconsortium.org/

 International Research Foundation for RSD/CRPS: http://www.rsdfoundation.org/

 RSD Association: https://rsds.org/

 

CRPS support and information

 Diagnosing and living with CRPS

 What is CRPS/RSD?

 Burning Nights: Burning Nights support groups

RSD support groups: https://rsds.org/find-a-support-group-near-you/

Chronic low back pain

Know Your Back

National Scoliosis Foundation: scoliosis.org

 North American Spine Society: spine.org

 United Spinal Association: unitedspinal.org

 United States Bone and Joint Initiative: usbji.org

World Spine Care: worldspinecare.org

 

Low back pain support and information

BackCare: backcare.org.uk

 Back Pain video: worldspinecare.org/resources/about-your-spine

HealthCentral – Back pain: healthcentral.com/back-pain

 Healthline – Back pain: healthline.com/health/back-pain

NIH low back pain fact sheet

 Spine-health