Resources

U.S. Pain has compiled a working list of resources in the following categories. If you have a resource to add, email emily@uspainfoundation.org.

General

Related organizations
Groups for pain patients
American Chronic Pain Association
For Grace
Give Pain A Voice
The Pain Community

Groups for pain specialists, researchers or advocacy
The American Academy of Pain Medicine – recommended
American Academy of Integrative Pain Management – recommended
Consumer Pain Advocacy Task Force – recommended)
Chronic Pain Research Alliance
Alliance for Balanced Pain Management – recommended
Society for Pediatric Pain Medicine
State Pain Policy Advocacy Network (SPPAN) – recommended

Groups and coalitions for general chronic conditions
Chronic Disease Coalition
Empowered Patient Coalition
Engaged Patients
I am essential coalition
Invisible Disability Association
Patients Rising
Partnership for Fighting Chronic Disease

Groups for specific pain conditions
American Cancer Society
American Childhood Cancer Organization
Arthritis National Research Foundation
Arthritis Foundation
ChildBrain (Headache)
Children’s Diabetes Foundation
Children’s Liver Disease Foundation
Dysautonomia International
Dysautonomia Center for Excellence
EDS Network Cares
Ferocious Fighters (CRPS)
Fighting RSD
Global Genes
Gout
International Foundation for Functional Gastrointestinal Disorders
http://www.ichelp.org
Juvenile Arthritis Association
Juvenile Diabetes Research Foundation
Kids Get Arthritis, Too (Arthritis Foundation)
National Cancer Institute
The National Migraine Association
National MS Society
National Organization for Rare Disorders
National Vulvodynia Association
Reflex Sympathetic Dystrophy Syndrome Association
TMJ Association
Wisconsin Chiari Center

Treatment, safety, and research

Pain management
General
U.S. Pain’s treatment options page – recommended
Learn About Your Pain – recommended
U.S. Pain’s Pain Patient Bill of Rights – recommended
U.S. Pain’s Pain Scale – recommended
What to do if you are denied proper pain management – recommended
American Chronic Pain Association Resource Guide to Chronic Pain Management (2017)
American Chronic Pain Association video: A Car with Four Flat Tires
TED Talk: “The mystery of chronic pain”
WebMD: Pain Management Guide, Treatment & Care
American Society of Anesthesiologist’s guide to pain management

Complementary medicine
U.S. Pain’s complementary medicine treatment page – recommended
U.S. Pain’s complementary medicine advocacy page – recommended
Alternative pain treatment directory
Complementary and integrative medicine – MedlinePlus
National Center for Complementary and Integrative Medicine at the NIH

Medical cannabis
U.S. Pain’s medical cannabis information page – recommended
U.S. Pain’s medical cannabis advocacy page – recommended
Americans for Safe Access
Center for the Study of Cannabis and Social Policy
Healer
Leafly: The World’s Cannabis Information Resource
Medicinal Marijuana ProCon
My Health Freedom
NORML: Working to reform marijuana laws
The Answer Page
Medical Cannabis as a Tool to Combat Pain and the Opioid Crisis: A Blueprint for State Policy

Treatment news and blogs
Aches and Gains with Dr. Paul Christo
Health Revolution Radio
National Pain Report– recommended
Pain-Free Living
Pain Medicine News
Pain News Network– recommended
PainPathways Magazine – recommended
Practical Pain Management
Migraine.com
Medical News Today – pain /anesthetics
Relief news
Spine-health

Treatment strategies
Journey through Pain: Walk for Healing (The Pain Cycle)
Pain Relief Revolution
Pain Scale – recommended
Pain Toolkit
ProPatient – recommended 

Emotional well-being and quality of life

Quality of life

General
WebMD: 11 Tips for Living With Chronic Pain
The Mighty: 15 Tips for Coping with Chronic Pain
Practical Pain Management: The 5 Coping Skills Every Chronic Pain Patient Needs

Blogs
365 pain-free days
But You Don’t Look Sick
ChronicBabe – recommended
Dr. Lynn Webster blog
Golden Graine – recommended
The Mighty – recommended
Pathway to Mindfulness blog
The Painful Truth
Turning Straw Into Gold

Support groups
Pain Connection – recommend

MD Junction
mychronicpainteam – recommended
myHealthTeams – recommended
Patients Like Me

Apps
Ouchie – recommended
My Chronic Pain Diary
WebMD Pain Coach

Art and writing programs
PainExhibit
Rare Artist

Books on chronic pain
By patients and caregivers:
No, It Is NOT In My Head: The Journey of a Chronic Pain Survivor from Wheelchair to Marathon Nicole Hemmenway – recommended
It Hurts Like Hell!: I Live With Pain — And Have A Good Life Anyway Ellen Lenox Smith – recommended
Not Lying Down – How I Conquered Years of Pain to Triumph at the Finish Line
Carole Staveley
Silent Courage: my lifelong journey through pain to wellness Mary Byrne Eigel
We’re In This Together: A Caregiver’s Story Rob Harris
Battle for Grace Cynthia Toussaint

By clinicians, researchers or other experts:
Conquer Your Chronic Pain: A Life-Changing Drug-Free Approach For Relief, Recovery, and Restoration Peter Abaci, MD – recommended
A Nation in Pain: Healing Our Biggest Health Problem  Judy Foreman
The Empowered Patient Julia Hallisy, MD
The Chronic Pain Solution by James Dillard MD, DC, CAc
The Pain Companion: Everyday Wisdom for Living With and Moving Beyond Chronic Pain Sarah Anne Shockley
Living Well with Pain and Illness: The Mindful Way to Free Yourself from Suffering
Vidyamala Burch
Take Charge of Your Chronic Pain Peter Abaci, MD – recommended
Pain Tracking – Your Personal Guide to Living Well with Chronic Pain Deborah Barrett
Full Catastrophe Living: Using the Wisdom of Your Body and Mind to Face Stress, Pain, and Illness Jon Kabat-Zinn
The Power of Breath: The Art of Breathing Well for Harmony, Happiness, and Health
Swami Saradananda
The Relaxation and Stress Reduction Workbook Martha Davis and Elizabeth Robbins Eshelman
Wisdom to Wellness: Healing Your Emotional Sufferings so the Physical Healing Can Follow
Maureen Minnehan Jones
Confronting Chronic Pain Steven H. Richeimer, MD, with Kathy Steligo
Defeat Chronic Pain Now! Bradley S. Galer, MD, and Charles E. Argoff, MD

Sleep tips
Guide to sleep for people with disabilities
Pain and sleep
Pain and sleep

Travel tips
Guide to traveling with chronic pain

Insurance and finances

Financial assistance

General
Caring Voice Coalition
Need Help Paying Bills
Retail savings for those with disabilities
The Simple Dollar

Prescription assistance
Download a free U.S. Pain Prescription Savings Cardrecommended
CARE Pharmacies Cooperative Inc.
Needy Meds Drug Discount Card
Patient Advocate Foundation (A Nonprofit Co-Pay Relief Program)
Partnership for Prescription Assistance Program
Pfizer RxPathways: Connecting Patients to the Help They Need
RxAssist – National Database
Your Pharmacy Benefit

Treatment assistance and grants
Chanda Plan Foundation
CMMS Deshae Lott Ministries, Inc. – Quality of Life Grants
Dental Lifeline
Free and Low Cost Medical Care Resources
Giving Angels Foundation
Good Days – Direct Financial Assistance
Help Hope Live
Hill-Burton Free and Reduced-Cost Health Care
Quest Diagnostics Patient Assistance Program

General financial grants
Cameron Siemers Foundation for Hope
Friends of Man
Modest Needs
Health Well Foundation
Patient Services Inc.
PAN Foundation
The Weber Foundation

Medical housing
Edmond J. Safra Family Lodge at NIH
Healthcare Hospitality Network
Hospitality Homes

Medical transportation
Air Care Alliance
Air Charity Network
Angel Airlines Samaritans
Angel Flight Central
Angel Wheels To Healing
Lifeline Pilots
Mercy Medical Angels
Miracle Flights
Operation Liftoff
Patient Airlift Services
Patient Travel Referral

Utilities and other expenses
Campaign for Home Energy Assistance

Education and scholarships
College Life – scholarship for students with disabilities
Financial Aid for Students with Disabilities
Fighting Back Scholarship Program
Patient Advocate scholarship
NeedyMeds scholarship listing

Loans and credit
Care Credit
Debt.org
Fifth Season Financial
Life Credit Company

Resources for specific populations

Individuals with disabilities

General
Disability Rights Advocates
A Guide to Disability Rights Laws
Business Ideas for People with Disabilities

Social security assistance
Disability Secrets: An Overview of Social Security Disability Insurance
Social Security Administration Benefits For People With Disabilities
10 Myths and Facts About Social Security Disability Insurance

Worker’s compensation
Worker’s compensation glossary
All Law: Tips for Making Sure Your Workers’ Compensation Claim is Paid
SimplyWorkComp: Claim adjusters’ best tips to avoid workers’ comp missteps

Assistive devices and technology support
Access for Athletes – Challenged Athletes Foundation’s (CAF) Flagship Program
Alternatives in Motion
American Sleep Apnea Association – CPAP Assistance Program
Compare Electric Wheelchairs
CHASA Orthotic Grants
EnergyUnited Foundation Round-Up Program
LifeNets – The Wheelchair Project
M.O.R.G.A.N. Project, Inc. – Pediatric Disability Equipment Exchange Program
My Gym Challenged America Foundation
Online Shopping For Consumers With Disabilities
Wheelchair Recycler

Car and home modifications
A Seniors Guide to Mobility Friendly Homes
Fiat Chrysler – Automobility Program
General Motors Mobility Reimbursement Program
Rebuilding Together – National Headquarters
Special Kids Fund, Inc.

Guide dogs and therapy animals
Assistance Dog United Campaign
Canine Companions for Independence
Canine Partners for Life – Service Dog Program
Doggie Does Good
Educated Canines Assisting with Disabilities
Equestrian Programs – Greenwell
Freedom Service Dogs of America
Helping Hands: Monkey Helpers for the Disabled
National Education for Assistance Dog Services (NEADS)
Paws With A Cause
Summit Assistance Dogs
Support Dogs, Inc. – Assistance Dogs
The Gift of Sunshine (TGOS) – The Hope Chest

Prostheses assistance
Bowman Limb Bank Foundation
Ellen Meadows Prosthetic Hand Foundation
Heather Abbott Foundation
Limbs for Life Foundation
Mending Limbs Organization
National Amputation Foundation – Medical Equipment Give-A-Way Program 

Resources by disease state

Migraine and headache disease

Migraine & Cluster Organizations

Alliance for Headache Disorders Advocacy: allianceforheadacheadvocacy.org

American Academy of Neurology: aan.com

American Headache Society: americanheadachesociety.org

American Interventional Headache Society: interventionalheadache.net

American Migraine Foundation: americanmigrainefoundation.org

Association of Migraine Disorders: migrainedisorders.org

CHAMP – Coalition For Headache And Migraine Patients: headachemigraine.org

Cluster Headache Support Group: chsg.org

Clusterbusters: clusterbusters.org

Migraine Research Foundation: migraineresearchfoundation.org

National Headache Foundation: headaches.org

National Institute of Neurological Disorders and Stroke (NINDS) – Migraine Information: ninds.nih.gov/Disorders/All-Disorders/Migraine-Information-Page

The Headache & Migraine Policy Forum: headachemigraineforum.org

Migraine & Cluster Support and Information

Chronic Migraine Awareness, Inc: facebook.com/ChronicMigraineAwareness/

Cluster Headaches Facebook Support Group: facebook.com/groups/17789934480/

Cluster Headaches Worldwide Support Group: clusterheadaches.com

Headache on the Hill: allianceforheadacheadvocacy.org/headache-on-the-hill/

HealthCentral: healthcentral.com/migraine

Healthline: healthline.com/health/migraine

Migraine.com: migraine.com

Migraine Again: migraineagain.com

MigraineDisease.com: migrainedisease.com

Migraine Support: facebook.com/SupportForMigraines

Miles for Migraine: milesformigraine.org

Move Against Migraine: facebook.com/groups/MoveAgainstMigraine

MyMigraineTeam: mymigraineteam.com

Out of My Head Film: outofmyheadfilm.com

Runnin’ for Research: runnin4research.org

The Migraine World Summit: migraineworldsummit.com

UCNS Certified Headache Specialists: ucns.org/globals/axon/assets/12423.pdf

Migraine Blogs

Adventures of a Spoonie Mom: adventuresofaspooniemom.com

Ashley Hattle: ashleyhattle.com

Brainstorm: migrainebrainstorm.com

Chronic Migraine Awareness: chronicmigraineawareness.blog

Dawn C. Buse, PhD: dawnbuse.com

Golden Graine: goldengraine.com

Her Migraine Life: facebook.com/Her-Migraine-Life-330896290399035/

Making of a Brave Man: facebook.com/makingofabraveman

Migraine Diva: themigrainediva.blogspot.com

Migraine Ninja: migraine.ninja

Migraine Warrior: migrainewarriorblog.wordpress.com

The Daily Headache: thedailyheadache.com

Headache Tracking Tools, Online Diaries and Assessments

BonTriage: bontriage.com

Curelator: curelator.com

iHeadache: iheadache.com

Miggy: migrainevibe.com

Migraine Buddy: migrainebuddy.com

Migraine Meter: migraine.com/migraine-meter

MigrainePal: migrainepal.com

MigrainePro: migrainepro.com

Ouchie: ouchie.com

Patients Like Me: patientslikeme.com

Complex regional pain syndrome

CRPS organizations

International Research Consortium on CRPS http://www.crpsconsortium.org/

International Research Foundation for RSD/CRPS: http://www.rsdfoundation.org/

RSD Association: https://rsds.org/

RSD Hope: http://www.rsdhope.org/

CRPS support and information

Diagnosing and living with CRPS

What is CRPS/RSD?

Burning Nights: Burning Nights support groups

RSD support groups: https://rsds.org/find-a-support-group-near-you/

Rheumatoid arthritis and disease

RA/RD Groups

American College of Rheumatology: rheumatology.org

Arthritis Foundation: arthritis.org

Arthritis National Research Foundation: curearthritis.org

Johns Hopkins Arthritis Center: hopkinsarthritis.org

Kids Get Arthritis, Too: kidsgetarthritistoo.org

National Institute of Arthritis and Musculoskeletal and Skin Diseases: bit.ly/NIAMSorg

Rheumatoid Patient Foundation: rheum4us.org 

RA/RD Support

Arthritis Introspective: arthritisintrospective.org

Creaky Joints: creakyjoints.org

Healthline: healthline.com/health/rheumatoid-arthritis

RA HealthCentral: healthcentral.com/rheumatoid-arthritis

RheumatoidArthritis.net: rheumatoidarthritis.net

Rheumatoid Arthritis: rheumatoidarthritis.org

MyRATeam: myrateam.com

RA/RD Blogs

All Flared Up: allflaredup.wordpress.com

Arthritic Chick: arthriticchick.com

From This Point Forward: fromthispointforward.com

Hurt Blogger: thehurtblogger.com

Living with Rheumatoid Arthritis: livingwithra.wordpress.com

RA Adventure Rider: midnightflier.blogspot.com

RA Warrior: rawarrior.com

RheumaBlog: rheumablog.me

Rheumatoid Arthritis Guy: rheumatoidarthritisguy.com

Tracking Tools, Online Diaries and Assessments

ArthritisPower: arthritispower.org/app

Ouchie: ouchie.com

Osteoarthritis

Osteoarthritis Groups

Arthritis Care: arthritiscare.org.uk

Arthritis Foundation: arthritis.org

Arthritis National Research Foundation: curearthritis.org

Arthritis Research UK: arthritisresearchuk.org

Global Alliance for Musculoskeletal Health: bjdonline.org

Osteoarthritis Action Alliance: oaaction.unc.edu

Osteoarthritis Research Society International: oarsi.org

United States Bone and Joint Initiative: usbji.org

Osteoarthritis support and information

Arthritis-health: arthritis-health.com

CreakyJoints: creakyjoints.org

HealthCentral – Osteoarthritis: healthcentral.com/osteoarthritis

My Life With Osteoarthritis: mylifewithosteoarthritis.com

Movement Is Life: movementislifejourney.com

Osteoarthritis and Sport/Exercise Facebook page: bit.ly/oasportsFB

OA Knee Pain: oakneepain.co.uk

Oh My Arthritis: ohmyarthritis.com

Start Moving Start Living: startmovingstartliving.com

Chronic low back pain

Know Your Back

National Scoliosis Foundation: scoliosis.org

North American Spine Society: spine.org

United Spinal Association: unitedspinal.org

United States Bone and Joint Initiative: usbji.org

World Spine Care: worldspinecare.org

Low back pain support and information

BackCare: backcare.org.uk

Back Pain video: worldspinecare.org/resources/about-your-spine

HealthCentral – Back pain: healthcentral.com/back-pain

Healthline – Back pain: healthline.com/health/back-pain

NIH low back pain fact sheet

Setting Scoliosis Straight: settingscoliosisstraight.org

Spine-health: spine-health.com

Are you in crisis?

If you are in crisis or considering harming yourself, we ask you to take one of the following steps immediately. Explain how you’re feeling. Remember part of being strong is acknowledging when to ask for help.

You Are Not Alone.

  • Call 911
  • Call a suicide/prevention crisis hotline
    (800-784-2433 or 800-273-8255)
    ◦  Assistance if you are deaf or hearing impaired? (800-799-4TTY)
    ◦  Para obtener asistencia en español, llame al (888-628-9454)
  • Send a message to a crisis text line: 741741
  • Veteran? Call 800-273-8255. Press “1” to reach the VA hotline
  • Go to a hospital emergency room