Infographics and handouts

Download the PDF: Chronic pain facts

Download the PDF: Types of neuromodulation therapies

Download the PDF: Create your pain management plan

Download the PDF: What is telehealth?

Download the PDF: Questions to ask about spinal cord stimulation

Download the PDF: Safe dosing guide

Download the PDF: Our community demographics

Download the PDF: Understanding the federal report on pain

Download the PDF: Osteoarthritis patients’ unmet needs

Download the PDF: Neuromodulation myth vs. fact

Download the PDF: Guide to 504 and IEP

Download the PDF: Crafting an
op-ed or letter to the editor

Interested in ordering print materials, free of charge?

INvisible Project magazines

Since 2010, U.S. Pain Foundation has published 15+ issues and distributed an estimated 100,000 copies of the INvisible Project magazine, featuring articles from experts and in-depth stories about real people’s experiences with chronic pain.

Additional resources

U.S. Pain has compiled a working list of external resources. If you have a resource you think we should add, email


Related organizations

Groups for pain patients

American Chronic Pain Association
For Grace
Give Pain A Voice
The Pain Community

Groups for pain specialists, researchers or advocacy
The American Academy of Pain Medicine 
Alliance to Advance Comprehensive Integrative Pain Management 
Consumer Pain Advocacy Task Force 
Chronic Pain Research Alliance 
Alliance for Balanced Pain Management 
Society for Pediatric Pain Medicine

Groups and coalitions for general chronic conditions
Chronic Disease Coalition
Empowered Patient Coalition
Engaged Patients
I am essential coalition
Invisible Disability Association 
Patients Rising
Partnership for Fighting Chronic Disease

Groups for specific pain conditions
American Cancer Society
American Childhood Cancer Organization
Arthritis National Research Foundation
Arthritis Foundation
Association of Migraine Disorders
Children’s Diabetes Foundation
Children’s Liver Disease Foundation
Dysautonomia International
Dysautonomia Center for Excellence
EDS Network Cares
Ferocious Fighters (CRPS)
Fighting RSD
Global Genes
International Foundation for Functional Gastrointestinal Disorders
Interstitial Cystitis Association
Juvenile Arthritis Association
Juvenile Diabetes Research Foundation
Kids Get Arthritis, Too (Arthritis Foundation)
National Cancer Institute
National Headache Foundation
National MS Society
National Organization for Rare Disorders
National Vulvodynia Association
Reflex Sympathetic Dystrophy Syndrome Association
TMJ Association
Wisconsin Chiari Center

Treatment, safety, and research

Emotional well-being and quality of life

Quality of life

WebMD: 11 Tips for Living With Chronic Pain
The Mighty: 15 Tips for Coping with Chronic Pain

But You Don’t Look Sick
Golden Graine
The Mighty
Pathway to Mindfulness blog
Turning Straw Into Gold

Support groups
Pain Connection 


My Chronic Pain Diary
WebMD Pain Coach

Art and writing programs

Books on chronic pain
By patients and caregivers:
No, It Is NOT In My Head: The Journey of a Chronic Pain Survivor from Wheelchair to Marathon Nicole Hemmenway 
It Hurts Like Hell!: I Live With Pain — And Have A Good Life Anyway Ellen Lenox Smith 
Not Lying Down – How I Conquered Years of Pain to Triumph at the Finish Line Carole Staveley
Silent Courage: my lifelong journey through pain to wellness Mary Byrne Eigel
We’re In This Together: A Caregiver’s Story Rob Harris
Battle for Grace Cynthia Toussaint

By clinicians, researchers or other experts:
Conquer Your Chronic Pain: A Life-Changing Drug-Free Approach For Relief, Recovery, and Restoration Peter Abaci, MD
A Nation in Pain: Healing Our Biggest Health Problem  Judy Foreman
The Empowered Patient Julia Hallisy, MD
The Chronic Pain Solution by James Dillard MD, DC, CAc
The Pain Companion: Everyday Wisdom for Living With and Moving Beyond Chronic Pain Sarah Anne Shockley
Living Well with Pain and Illness: The Mindful Way to Free Yourself from Suffering
Vidyamala Burch
Take Charge of Your Chronic Pain Peter Abaci, MD
Pain Tracking – Your Personal Guide to Living Well with Chronic Pain  Deborah Barrett
Full Catastrophe Living: Using the Wisdom of Your Body and Mind to Face Stress, Pain, and Illness Jon Kabat-Zinn
The Power of Breath: The Art of Breathing Well for Harmony, Happiness, and HealthSwami Saradananda
The Relaxation and Stress Reduction Workbook Martha Davis and Elizabeth Robbins Eshelman
Wisdom to Wellness: Healing Your Emotional Sufferings so the Physical Healing Can Follow
Maureen Minnehan Jones
Confronting Chronic Pain Steven H. Richeimer, MD, with Kathy Steligo
Defeat Chronic Pain Now! Bradley S. Galer, MD, and Charles E. Argoff, MD

Sleep tips
Guide to sleep for people with disabilities
Pain and sleep

Travel tips

Insurance and finances

Financial assistance

Caring Voice Coalition
Need Help Paying Bills
Retail savings for those with disabilities
The Simple Dollar

Prescription assistance
Download a free U.S. Pain Prescription Savings Cardrecommended
CARE Pharmacies Cooperative Inc.
Needy Meds Drug Discount Card
Patient Advocate Foundation (A Nonprofit Co-Pay Relief Program)
Partnership for Prescription Assistance Program
Pfizer RxPathways: Connecting Patients to the Help They Need
RxAssist – National Database
Your Pharmacy Benefit

Treatment assistance and grants
Chanda Plan Foundation
CMMS Deshae Lott Ministries, Inc. – Quality of Life Grants
Dental Lifeline
Free and Low Cost Medical Care Resources
Giving Angels Foundation
Good Days – Direct Financial Assistance
Help Hope Live
Hill-Burton Free and Reduced-Cost Health Care
Quest Diagnostics Patient Assistance Program

General financial grants
Cameron Siemers Foundation for Hope
Friends of Man
Modest Needs
Health Well Foundation
Patient Services Inc.
PAN Foundation
The Weber Foundation

Medical housing
Edmond J. Safra Family Lodge at NIH
Healthcare Hospitality Network
Hospitality Homes

Medical transportation
Air Care Alliance
Air Charity Network
Angel Airlines Samaritans
Angel Flight Central
Angel Wheels To Healing
Lifeline Pilots
Mercy Medical Angels
Miracle Flights
Operation Liftoff
Patient Airlift Services
Patient Travel Referral

Utilities and other expenses
Campaign for Home Energy Assistance

Education and scholarships
College Life – scholarship for students with disabilities
Financial Aid for Students with Disabilities
Fighting Back Scholarship Program
Patient Advocate scholarship
NeedyMeds scholarship listing

Loans and credit
Care Credit
Fifth Season Financial
Life Credit Company

Resources for specific populations

Individuals with disabilities

Disability Rights Advocates
A Guide to Disability Rights Laws
Business Ideas for People with Disabilities

Social security assistance
Disability Secrets: An Overview of Social Security Disability Insurance
Social Security Administration Benefits For People With Disabilities
10 Myths and Facts About Social Security Disability Insurance

Worker’s compensation
Worker’s compensation glossary
All Law: Tips for Making Sure Your Workers’ Compensation Claim is Paid
SimplyWorkComp: Claim adjusters’ best tips to avoid workers’ comp missteps

Assistive devices and technology support
Access for Athletes – Challenged Athletes Foundation’s (CAF) Flagship Program
Alternatives in Motion
American Sleep Apnea Association – CPAP Assistance Program
Compare Electric Wheelchairs
CHASA Orthotic Grants
EnergyUnited Foundation Round-Up Program
LifeNets – The Wheelchair Project
M.O.R.G.A.N. Project, Inc. – Pediatric Disability Equipment Exchange Program
My Gym Challenged America Foundation
Online Shopping For Consumers With Disabilities
Wheelchair Recycler

Car and home modifications
A Seniors Guide to Mobility Friendly Homes
Fiat Chrysler – Automobility Program
General Motors Mobility Reimbursement Program
Rebuilding Together – National Headquarters
Special Kids Fund, Inc.

Guide dogs and therapy animals
Assistance Dog United Campaign
Canine Companions for Independence
Canine Partners for Life – Service Dog Program
Doggie Does Good
Educated Canines Assisting with Disabilities
Equestrian Programs – Greenwell
Freedom Service Dogs of America
Helping Hands: Monkey Helpers for the Disabled
National Education for Assistance Dog Services (NEADS)
Paws With A Cause
Summit Assistance Dogs
Support Dogs, Inc. – Assistance Dogs
The Gift of Sunshine (TGOS) – The Hope Chest

Prostheses assistance
Bowman Limb Bank Foundation
Ellen Meadows Prosthetic Hand Foundation
Heather Abbott Foundation
Limbs for Life Foundation
Mending Limbs Organization
National Amputation Foundation – Medical Equipment Give-A-Way Program 

Resources by disease state

Migraine and headache disease

Migraine & Cluster Organizations

 Alliance for Headache Disorders Advocacy:

American Academy of Neurology:

American Headache Society:

American Interventional Headache Society:

American Migraine Foundation:

 Association of Migraine Disorders:

CHAMP – Coalition For Headache And Migraine Patients:

Cluster Headache Support Group:


Danielle Byron Henry Migraine Foundation 

 Migraine Research Foundation:

National Headache Foundation:

National Institute of Neurological Disorders and Stroke (NINDS) – Migraine Information:

 The Headache & Migraine Policy Forum:


Migraine & Cluster Support and Information

 Chronic Migraine Awareness, Inc:


Cluster Headaches Facebook Support Group:

 Cluster Headaches Worldwide Support Group:

Headache on the Hill:



Migraine Again:

Migraine Support:

 Miles for Migraine:

Move Against Migraine:


 Out of My Head Film:

Runnin’ for Research:

 The Migraine World Summit:

UCNS Certified Headache Specialists:


Migraine Blogs

Adventures of a Spoonie Mom:

 Ashley Hattle:


Chronic Migraine Awareness:

Dawn C. Buse, PhD:

Golden Graine:

 Her Migraine Life:

Making of a Brave Man:

Migraine Diva:

 Migraine Ninja:

Migraine Warrior:

The Daily Headache:


Headache Tracking Tools, Online Diaries and Assessments





Migraine Buddy:

Migraine Meter:




Patients Like Me:


Osteoarthritis Groups

 Arthritis Care:

 Arthritis Foundation:

 Arthritis National Research Foundation:

 Arthritis Research UK:

 Global Alliance for Musculoskeletal Health:

 Osteoarthritis Action Alliance:

 Osteoarthritis Research Society International:

 United States Bone and Joint Initiative:


Osteoarthritis support and information



 HealthCentral – Osteoarthritis:

 My Life With Osteoarthritis:

 Movement Is Life:

 Osteoarthritis and Sport/Exercise Facebook page:

 OA Knee Pain:

 Oh My Arthritis:

 Start Moving Start Living:

Rheumatoid arthritis and disease

 RA/RD Groups

 American College of Rheumatology:

 Arthritis Foundation:

 Arthritis National Research Foundation:

Johns Hopkins Arthritis Center:

 Kids Get Arthritis, Too:

 National Institute of Arthritis and Musculoskeletal and Skin Diseases:

 Rheumatoid Patient Foundation: 


RA/RD Support

 Arthritis Introspective:

 Creaky Joints:


 RA HealthCentral:


Rheumatoid Arthritis:



RA/RD Blogs

All Flared Up:

 Arthritic Chick:

 From This Point Forward:

Hurt Blogger:


Living with Rheumatoid Arthritis:

 RA Adventure Rider:

 RA Warrior:


Rheumatoid Arthritis Guy:


Tracking Tools, Online Diaries and Assessments



Complex regional pain syndrome

CRPS organizations

International Research Consortium on CRPS

 International Research Foundation for RSD/CRPS:

 RSD Association:

 RSD Hope:


CRPS support and information

 Diagnosing and living with CRPS

 What is CRPS/RSD?

 Burning Nights: Burning Nights support groups

RSD support groups:

Chronic low back pain

Know Your Back

National Scoliosis Foundation:

 North American Spine Society:

 United Spinal Association:

 United States Bone and Joint Initiative:

World Spine Care:


Low back pain support and information


 Back Pain video:

HealthCentral – Back pain:

 Healthline – Back pain:

NIH low back pain fact sheet

 Setting Scoliosis Straight