In The News
- How I manage my Ehlers-Danlos syndrome: A three-part series
- Yoga for chronic pain: An interactive class and Q&A
- How to talk about pain so your doctor will listen
By Ellen Lenox Smith
Everyone’s journey living with Ehlers-Danlos syndrome (EDS) is different, making it difficult for the medical community to learn how to help us. There are 13 different subtypes, with various levels of severity and impact. While some are able to live a decent life with little pain, others cope with constant subluxations and even dislocations. Some patients also have involvement of the spine and spinal cord, such as tethered cord, instability of the neck, and Chiari I malformation.
During this free webinar on Jan. 21 at 1 pm EST, instructor Ryan Drozd will offer insight into the benefits of yoga for chronic pain and how to find a studio and classes that are appropriate for your health situation. He’ll also lead participants in a 20-minute chair yoga session, which is suitable for all levels of ability.
Register nowDrozd is a National Academy of Sports Medicine-Certified Personal Trainer and Fitness Nutrition Specialist, RYT-200 Yoga Alliance Teacher, Licensed Massage Therapist, and Reiki Master. He has been coping with chronic upper back pain, neck pain, and rib pain for over seven years, which led him to begin learning anything and everything related to wellness. His goal is to provide others with viable options for pain relief through sharing his personal experiences. In his spare time he enjoys reading, yoga, cooking, and almost anything outdoors. Ryan is also an ambassador for the U.S. Pain.
By Diane Cleverly, PhD, Founder of Concierge Conversations
Did you know that by 2020, there will be a shortage of about 46,000 primary care doctors in the U.S.?
Not only that, but Medicare and Medicaid reimbursements per patient have dropped. That means physicians are increasingly pressured to see more patients per day.
What does this mean for you, the patient? For one thing, your doctor has basically taken a pay cut. So it’s more important than ever to walk into a doctor’s appointment prepared in order to help you connect with your doctor on a personal level.
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Want to become the voice of hope and empowerment, as well as create pain awareness and support in your local community?
Become a U.S. Pain Foundation ambassador.
CONNECT WITH PAIN WARRIORSLooking to connect with others going through the same challenges?
Join Pain Connection, which offers in-person support groups and free conference call support groups.
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A Few U.S. Pain Programs
INvisible Project
The INvisible Project uses photography and story to illustrate the struggles of those living with pain and chronic medical conditions.
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Learn About Your Pain
Learn about Your Pain is a comprehensive guide to the multitude of conditions that cause pain.
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Take Control Of Your Pain
Take Control Of Your Pain are patient-education days for pain warriors and care champions to learn tools to empower them to take control of their personal pain and medical journeys.
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An organization created by people with pain for people with pain, U.S. Pain recognizes and validates the challenges 50 million Americans endure every day. We strive to be the leading source of support for those living with pain, as well as their caregivers and care providers.
U.S. Pain is here to offer hope, information, and stories and to honor those whose lives have been affected by pain.