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  • Living with Pain

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    options to treat pain


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    • Public comment deadline is April 1
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In The News

  • Voices from the Hill

  • By Jorie Logan-Morris and Jeannette Rotondi

    Every year in February, advocates for migraine and headache disease come together in Washington, D.C., for an event known as Headache on the Hill (HOH). HOH is organized by the Alliance for Headache Disorders Advocacy (AHDA) and has been running now for 12 years.

    During HOH, advocates of all kinds — migraine and headache patients, caregivers, doctors and specialists, and more — work together to lobby and meet with Congress, presenting important legislation and “asks” related to migraine and headache disease in hopes that lawmakers will support our requests. This in turn helps bring more national awareness to migraine and headache disease and ultimately further supports the millions who suffer all across the country.

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  • CPATF submits letter on draft report to HHS Secretary Azar; docket letter planned

  • Last week, the Consumer Pain Advocacy Task Force (CPATF)–a coalition of pain patient-related nonprofits, including U.S. Pain Foundation–submitted a letter to Department of Health and Human Services (HHS) Secretary Alex Azar regarding the draft report on pain released by the HHS Pain Management Best Practices Inter-Agency Task Force.

    The CPATF also plans to submit a longer letter to the federal docket with more specific feedback by April 1.

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  • Understanding paroxysmal extreme pain disorder

  • By Reese Jones

    Rare Disease Day was last month, but it’s always a good time to raise awareness about unique disorders.

    Paroxysmal extreme pain disorder, or PEPD, is a little-known and discussed illness — even among people that are affected by chronic pain. Characterized by skin redness, flushing, and severe pain attacks in various parts of the body, this debilitating condition has been documented by scientific literature and only currently affects 80 individuals, according to a report by the National Library of Medicine. Like many other rare diseases, PEPD is generally thought to be caused by a genetic mutation. This condition often manifests from infancy all throughout a patient’s life, while other studies have pointed to the likely possibility of it being felt even in utero.

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EMBARK UPON YOUR JOURNEY

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BECOME AN AMBASSADOR

Want to become the voice of hope and empowerment, as well as create pain awareness and support in your local community?

Become a U.S. Pain Foundation Ambassador & Advocacy leader.

CONNECT WITH PAIN WARRIORS

Looking to connect with others going through the same challenges?
Join Pain Connection, which offers in-person support groups and free conference call support groups three times a month.

EMBARK UPON YOUR JOURNEY

PROGRAMS

A Few U.S. Pain Programs

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INvisible Project

The INvisible Project uses photography and story to illustrate the struggles of those living with pain and chronic medical conditions.

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Learn About Your Pain

Learn about Your Pain is a comprehensive guide to the multitude of conditions that cause pain.

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Take Control Of Your Pain

Take Control Of Your Pain are patient-education days for pain warriors and care champions to learn tools to empower them to take control of their personal pain and medical journeys.

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Pain Medicine 411

Pain Medicine 411 shares credible information regarding medication safety.

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ALL PROGRAMS

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Our Commitment to You

An organization created by people with pain for people with pain, U.S. Pain recognizes and validates the challenges 50 million Americans endure every day. We strive to be the leading source of support for those living with pain, as well as their caregivers and care providers.

U.S. Pain is here to offer hope, information, and stories and to honor those whose lives have been affected by pain.