We are delighted to share the dates and location of the next Pediatric Pain Warrior weekend retreat: May 24-26 at Morgan’s Wonderland in San Antonio, TX.
Morgan’s Wonderland is an ultra-accessible family fun park with rides and activities for kids of all ages and abilities. Like with the inaugural 2018 retreat, the weekend will bring together children with pain and their families for a weekend of education, support, and fun.
A new video about the Pediatric Pain Warrior retreat in Disney World is now available. Held last November, the weekend brought together 142 kids with pain and their family members from across the country. The event was the official kick-off of U.S. Pain’s new Pediatric Pain Warrior program, which is dedicated to the unique needs of children with chronic illnesses and their loved ones.
The video was created by Yellow Dog Productions and highlights the kids’ experiences and why the weekend mattered to them.
The weekend included plenty of opportunities for fun, like dinner with Mickey Mouse and a scavenger hunt, but the focus was education and empowerment. Saturday featured a full day of presentations ranging from the importance of talking about pain and sharing your story to tips for living with common pain conditions, like Ehlers-Danlos syndrome and complex regional pain syndrome. The retreat also celebrated the release of the INvisible Project: Pediatric second edition, which will be available online in the coming weeks.
Most important, however, the event was a time for kids with pain and their family members to connect with others like them, share their experiences, and realize they’re not alone.
Here are some of the comments from attendees:
The Chicago event featured seven different presentations and workshops:
The day will feature talks ranging from a renowned pain specialist offering insight into communicating with your care team, to the perspective of a Boston Marathon survivor and pain warrior, to live demonstrations with a new virtual reality program for pain management.
In addition to educational presentations and workshops, attendees will have the chance to win one of five exciting prizes: a Quell device starter kit ($299 value); an Oska Pulse device ($399 value); one of two Ergo21 seat cushions valued ($80 value each); and an Aloe MD gift basket.
Please note that the event is created with pain warriors in mind. There will be numerous breaks for rest and stretching. In addition, attendees are encouraged to bring any assistive devices or supports that will help make them comfortable, whether special pillows, chairs, braces, etc.
To see the full agenda or to register, click here. Registration closes Nov. 5.
The events are free and open to all. Lunch will be provided. For more details or to register, visit https://uspainfoundation.org/tcoyp/.
Take Control of Your Pain: Chicago
Saturday, October 20, 2018
9 AM – 3 PM
Chicago Marriott Midway
6520 South Cicero Avenue
Chicago, IL 60638
This event is being co-hosted by Global Healthy Living Foundation and International Foundation for Autoimmune and Autoinflammatory Arthritis, with additional support from the Lupus and Allied Diseases Association and the National Infusion Center Association.
Take Control of Your Pain: Boston
Saturday, November 10, 2018
10 am – 3:30 pm
Joseph B. Martin Conference Center at Harvard Medical School
77 Avenue Louis Pasteur
Boston, MA 02115
This event being is co-hosted by the Academy of Integrative Pain Management.