Through Pain Connection, U.S. Pain Foundation offers a network of support groups across the country. These support groups are led by people with pain who have received special training from Gwenn Herman, LCSW, DCSW, Pain Connection’s Clinical Director, and Cindy Steinberg, U.S. Pain’s National Director of Policy and Advocacy.
We are always looking to expand support groups to even more locations.
By Diane Talbert, a U.S. Pain Foundation advocate
I’m a “baby boomer,” and I’ve experienced psoriatic arthritis for over 25 years. It’s hard to explain what it’s like to be tired all the time or feel pain 24 hours a day. The absurd part is that it doesn’t even bother me anymore. I just take my pain pills and go about my day. There are times I do face daily challenges and I know I’m not alone with this.
On May 21, U.S. Pain Foundation held the first stop of its INvisible Project state house tour at the state capitol in Providence, Rhode Island.
MIDDLETOWN, CT, June 18, 2019 – The former CEO of U.S. Pain Foundation, Paul Gileno, pleaded guilty yesterday in the District of Connecticut to wire fraud and tax evasion, in violation of 18 U.S.C. 1343 and 26 U.S.C. 7201 in connection with his misappropriation of funds from the organization. Although a sentencing date has not yet been set, U.S. Pain Foundation is seeking restitution to recover financial losses that resulted from his misdeeds.
Have you ever wanted to find a way to better communicate with your doctor, get the most out of your visits, and maximize your treatment plan?
If yes, please join us this Thursday, June 13, at 7 pm EST for an intimate conversation between neurologist and headache specialist Abby Chua, DO, and patient advocate Katie Golden. Dr. Chua and Katie will discuss what patients and doctors can learn from one another, and offer tips for interacting.
Kids who live with chronic pain have same desire as anyone else their age: to feel understood, connected, and supported. Attendees at the second Pediatric Pain Warriors retreat, held over Memorial Day weekend in San Antonio, TX, experienced all this and more. The retreat included 90 kids with pain and their family members. (View a slideshow from the weekend.)
The weekend kicked off with a welcome dinner, which included a surprise visit from former Los Angeles Chargers linebacker Charmeachealle (Mike) Moore. On Saturday, children and their family members were treated to an education day with speakers covering topics from virtual reality for pain to medication safety. On the final day of the weekend, everyone headed to Morgan’s Wonderland, a handicapped-accessible theme park, for some well-deserved fun in the sun. Founded in 2010, the park admits anyone with a special need free of charge, no questions asked.
FOR IMMEDIATE RELEASE
Contact: Nicole Hemmenway at nicole@invisibleproject.org
Middletown, CT (June 1, 2019)– In time for Migraine & Headache Awareness Month, U.S. Pain Foundation has released its third edition of the INvisible Project focusing on headache and migraine diseases. The publication depicts the reality of life with pain, and why people living with headaches diseases need and deserve more help, treatment options, and research. It also serves as an inspiration to those living with the disease, offering hope and resources.
Photos courtesy of Shawn Dickens.