By Tom Norris She had rehearsed it in the car on the way to her appointment. The three things she wanted to say, in...
Blog Articles
Frustrating. Lonely. Exhausting. Three Words That Capture Life With Pain.
Living with chronic pain can feel impossible to describe. And it can be truly difficult to make others understand what...
Lonely Hearts: A Poem
By Molly Kamper “Kings depend on lonely hearts to trust their gilded lies.”* How do you get a Lonely Heart? By...
More Than Tired: The Exhaustion of Living With Pain
By Nikhil Sadavarte I fell to the pillow. I was exhausted. It had been a long day and a long shift at work. My eyes...
Boundaries Without Guilt: Learning to Say No When You Live With Chronic Pain
By Alina Savulescu “No” is still the word I struggle with the most. Even now, after learning what ignoring my limits...
Turning the Tables: Becoming a Caregiver to My Caregiver
For years, my husband has been helping me live my life with as much dignity as possible as I deal with Ehlers-Danlos...
How to Protect Your Long-Term Disability Benefits After Approval When You Live With Chronic Pain
By Jennifer Hess and Samantha Wladich, Riemer Hess LLC Getting approved for long-term disability (LTD) benefits can...
5th Family Summer Camp Gathers 60+ Families Navigating Pediatric Pain
The fifth-annual Pediatric Pain Warrior Family Summer Camp brought together a record number of families for a...
I Asked for Water—And Got So Much More
By Kari McBride It started with a quiet “Hmmph” and crossed arms. Then came the audible signs of frustration....
Federal Legislation Introduced: Better Pain Data for Better Treatments
In an important step forward for the chronic pain community, the bipartisan Advancing Research for Chronic Pain Act...
When Acceptance Isn’t Giving Up
By Kari McBride It was the phone call from the school nurse’s office that triggered a chain reaction. On the other end...
Storms Bring a Painful Reminder of Our Disability
Living with a progressive, painful condition is a challenge, to say the least. I have learned that if I try to focus...