Living with pain can feel isolating. But your journey matters—and your voice is needed today. By sharing your...
Blog Articles
Share What It’s Like Growing Up With Chronic Pain
Are you a kid or teen living with pain that doesn’t go away? Whether it’s CRPS, migraine, Ehlers-Danlos syndrome,...
Treading Water with Chronic Pain in a Sea of Uncertainty
Living life with chronic pain is a constant challenge. I am sure I am not alone in experiencing many moments of...
The Key to Health Equity: Multi-Stakeholder Engagement, with an Emphasis on Patient Voices
By Yasmeen Long, MAEarly in my career, I recruited participants for a study on kidney disease, and one patient asked...
Nicole Watson
Learning to Be More Than Her Crohn’s By Jill Waldbieser Nicole Watson was diagnosed with a lifelong, life-changing...
The Dieng Family
‘We’re the Migraine Family’ By Ashley Hattle At 13, Jibreel Dieng has known the pain of migraine attacks for almost...
Devin Goldstein
Healing from Pain and Doubt: The Power of Putting Health First By Sara Walsh He hadn’t fallen or even landed...
Dawn Gibson
Using Butterflies and Community Support to Navigate Challenging Pain By Grayson Schultz Thousands of people who follow...
Amy Liles
Finding Blessings in the Midst of Oppressive Pain, Delayed Diagnosis By Pressley Frevert Amy Liles is relentlessly...
Gayle Bell
A Lifetime of Not Being Taken Seriously By Calli Barker Schmidt Pain has been a constant in Gayle Bell’s life since...
Preksha Gupta
Engineering a Better Life Despite Pain By Audrey Ingram Preksha Gupta is a bright, bubbly, 23-year-old mechanical...
Nisha Ray
With Multiple Diagnoses, Self-Advocacy is a Vital Tool By Kirsten Ballard When her pain was at its worst, Nisha Ray...