The other day, I was in the pool kicking on my back and sculling with my hands on my side, which is all my body can...
Blog Articles
Predicting and Preventing Acute-to-Chronic Pain: Research with Far-Reaching Effects
Usually, when an injury causes pain, the sensation is only temporary. You twist your ankle, it’s sore for a few days,...
Clinical Trials: A Way for Patients to Contribute to Pain Research
Clinical trials offer concrete mechanisms for individuals living with pain to contribute to the landscape of pain...
Finding Support from Home: The Power—and Limits—of Online Communities
By Nancy Harris Bonk and Jess Napier, Education Council for Headache Online (ECHO) Living with migraine and headache...
Event: Learn About Supplements to Manage Chronic Pain
“Building your Toolbox” is a monthly series that allows people with chronic pain to explore alternative treatment...
COVID’s Impact on migraine
by Lindsay Videnieks, JD, The Headache and Migraine Policy Forum (HMPF) and Katie M. Golden, Professional Patient As...
Making the invisible visible
The evolution of the INvisible Project. In 2010, Nicole Hemmenway was relatively new to patient advocacy. She had just...
When Health Care Hurts: Understanding Disparities in Migraine and Headache
By Emily Lemiska Imagine you arrive at the emergency room for stabbing head pain. You think it could be a migraine...
Ronetta Stokes
The 3Es of Advocacy Salt under the tongue, Vicks under the nose, hold your breath, put your feet in ice. These aren’t...
Syanne Centeno-Bloom
Turning Pain and Misdiagnoses into Advocacy Syanne Centeno-Bloom is a woman with intelligence, drive, and disarmingly...
The Barking Cat: Being a Father with Cluster Headaches
By Mark Odlum My 13-month-old daughter is “arfing” at the barking cat toy her aunt Alyssa gave her. She just learned...
Use Your Voice: Advocating
By: Ellen Lenox Smith Do you have an issue that you are concerned about? Do you see where change needs to be made? Are...