City & state: Green Bay, WI
Pain warrior role: U.S. Pain advocate since July 2014
What type of health conditions you live with: Vestibular migraine, cluster headaches, fibromyalgia, rheumatoid arthritis, and osteoarthritis
What is your favorite tip for others with chronic pain: “It’s important for me to show my children that living with chronic illnesses and pain does not mean you can’t lead a good life. Every morning I wake up believing it’s going to be a productive and great day. Even if my body limits me from doing certain activities, I’m proud of the fact that I tried my best despite whatever obstacles I faced.”
U.S. Pain will hold its third annual Real Hope, Real Heroes Gala: A celebration of real-life heroes on June 2 in Scottsdale, AZ. The goal of the evening is to shed light on the invisibility of pain while also honoring amazing pain warriors. All proceeds go toward U.S. Pain’s programs and services.
This year, the gala will feature participants from the last two editions of the INvisible Project, which highlighted migraine disease and rheumatoid arthritis/rheumatoid disease respectively. The INvisible Project is a print magazine and website that highlights the bravery and perseverance of pain warriors through stories and photos.
U.S. Pain Foundation is proud to announce it will officially launch a Pediatric Pain Warrior Program in 2018.
“This program’s goal is to ensure that no child feels like he or she is fighting this journey alone,” says Paul Gileno, president and founder of U.S. Pain. “To do that, we will provide resources for the pain warrior as well as his or her family, offer support online as well as in-person, give families a safe and secure place to share stories, and keep the community up-to-date on events and awareness campaigns.”
On Feb.12 and 13, representatives from U.S. Pain Foundation proudly participated in Headache on the Hill (HOH) in Washington, DC. Now in its 11th year, HOH is an event that gathers patients, caregivers, and providers together to advocate on Capitol Hill on issues related to headache, migraine, and cluster diseases. This year marked the largest attendance with a total of over 140 advocates representing 40 states.
U.S. Pain is offering three online letter-writing campaigns to urge legislators improve access to medical cannabis. Check below to see if your state is among those that don’t allow full access to medical cannabis for people with pain. Please note you may need to use your nine-digit zip code, which you can look up here.
States: AL, GA, IN, IA, KY, MS, MO, NC, OK, TN, SC, TX, UT, VA, WI and WY
A March 20 webinar for members of the U.S. Pain community will feature Rachel Horcher, a licensed massage therapist, movement specialist and yoga instructor. This free webinar begins at 1 pm EST.
During her presentation, Horcher will discuss how massage can help with chronic pain, how to find the right massage therapist and best communicate with him or her, and the different types of massages. This webinar is suited to both individuals who haven’t tried massage before and those who have.
Ouchie, an official partner of the U.S. Pain Foundation, is releasing a new version of its free app for iOS and Android users next week.
The app offers people with chronic conditions a way to track their treatments, set goals, interact with a supportive community, and find resources. Users also can get rewarded for their daily accomplishments with gift cards and other prizes. The more achievements you unlock, the more prizes you can win.
Rare Disease Day is internationally recognized as Feb. 28. This year, U.S. Pain Foundation had multiple pain warriors who represented the organization during February and also on the first of March for Rare Disease Day. Ambassadors representing U.S. Pain included Suzanne Stewart, Julian Phillips, and Dawn Stancliff.
Each hosted an event to raise awareness for the many Americans living with a rare disease; statistics show 1 in 20 people are affected. Stancliff hosted an information table at the National Institutes of Health in Bethesda, MD; Stewart hosted a table at The Summit in Canton, MI; and Phillips hosted a table at the Harrisburg State Building in PA.
For the 2018 legislative sesion, Director of State Advocacy and Alliance Development Shaina Smith says that U.S. Pain will be offering more ways to engage than ever before.
The State Advocacy team also has revamped its online tools for taking action. The latest calls-to-action will appear on the Advocacy webpage as well as on U.S. Pain’s social media pages. In addition, there are tools for tracking bills and looking up representatives’ contact information.
U.S. Pain Foundation is a nonprofit dedicated to serving the 100 million Americans living with chronic pain. As an organization entirely comprised of people with pain and their caregivers, we work hard to offer effective programs to educate, empower, connect, and advocate for people with debilitating chronic illnesses.
In order to provide these programs, we receive funding from a number of sources, including pharmaceutical companies. Our donors are listed publicly on the transparency section of our website, and the funding we receive is not used to promote one type of treatment over another. We support a balanced, multidisciplinary approach to pain care. Doctors and their patients must weigh the benefits and the risks of all pain management options and work together to decide on the right treatment plan.