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New EDS Patient: Where Do I Begin?

Just diagnosed with Ehlers-Danlos syndrome? Explore guidance, symptoms, and real-life strategies to help you navigate EDS and HSD with confidence.

Learning to Savor the Small Moments

In a life shaped by chronic pain, one woman discovers unexpected peace in quiet moments—watching birds, breathing deeply, and learning to truly savor life.

Aging with Dignity and Finding New Purpose While Living with Chronic Pain

A powerful personal story of aging with chronic pain and Ehlers-Danlos syndrome—exploring loss, resilience, and finding new purpose and meaning in life.

Moving Forward Without Going Back

After injury and chronic illness changed her life, one discovers that moving forward doesn’t mean going back—it means redefining purpose and self-worth.

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Advocating for safer medications at the FDA

On April 5, U.S. Pain Foundation’s Senior State Advocate, Wendy Foster, flew to D.C. for the joint meeting of the Anesthetics and Analgesic Drug Products Advisory Committee and Drug Safety and Risk Management at the Food and Drug Administration...

Tune in to two key federal pain policy events in May

U.S. Pain urges its members to participate in livestreams of two major events about pain policy at the federal level happening this May. The first is a meeting at the U.S. Department of Health and Human Services entitled, “Implementation of the...

Fun & easy ways to fundraise

As a nonprofit, U.S. Pain Foundation runs solely on contributions from corporate sponsors as well as private donors. The organization is encouraging members to consider hosting fundraising events to help support its mission and services. “We rely...

U.S. Pain appointed to NCPIE board of directors

The National Council on Patient Information and Education (NCPIE) recently announced that the U.S. Pain Foundation is among eight patient groups selected in the “consumer organization” board of directors category. U.S. Pain will serve on the board...

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