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Melissa Dwyer, who took her own life at age 22 due to chronic migraine disease, is among the stories highlighted.

The INvisible Project: Migraine second edition was published at the end of May, just in time for the start of Migraine and Headache Awareness Month. The magazine features the stories and photos of 10 individuals living with migraine and headache disorders, building on the first INvisible Project: Migraine edition that was released last year.

“We are so thrilled to once again highlight the challenges and triumphs of people living with migraine and headache disorder,” says Nicole Hemmenway, interim CEO of U.S. Pain. “This population is too often overlooked and undertreated.”

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FOR IMMEDIATE RELEASE

CONTACT:
Emily Lemiska
Cell phone: 860-748-1349
Email: Emily@uspainfoundation.org

Middletown, Conn. (May 4, 2018)—With the release of its eighth edition of the INvisible Projecthis month, U.S. Pain Foundation is tackling the stigma of medical cannabis. The issue features the raw but inspiring stories and photos of 10 individuals using cannabis to help manage their chronic health issues.

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With the release of its eighth edition of the INvisible Project on April 15, U.S. Pain is tackling the stigma of medical cannabis. The issue features the raw but often inspiring stories and photos of 10 individuals using cannabis to help manage their chronic health issues.

The INvisible Project was first published in 2010 as a way to create more awareness about the trials and triumphs of people living with pain. Last year, an estimated 65,000 copies were distributed. Patients’ stories are also featured on displays, which are then exhibited at conferences and events across the country.

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U.S. Pain is dedicated to providing dozens of programs and services free of charge to the pain community. In order to do that, we rely on grants and charitable donations. One of our primary fundraisers is our annual Real Hope, Real Heroes gala, a night of fun, food, and dancing, which honors people with pain. This year’s event will be held in Scottsdale, AZ, on June 2. Tickets are on sale now.

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U.S. Pain is excited to announce a new program, Pediatric Pain Warriors, dedicated to serving kids with pain and their families. The program will consist of additional pediatric editions of the INvisible Project, pediatric-focused educational events like Take Control of Your Pain Days, support groups, weekend retreats, scholarships to attend a summer camp designed for kids with chronic conditions, and online resources.

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U.S. Pain will hold its third annual Real Hope, Real Heroes Gala: A celebration of real-life heroes on June 2 in Scottsdale, AZ. The goal of the evening is to shed light on the invisibility of pain while also honoring amazing pain warriors. All proceeds go toward U.S. Pain’s programs and services.

This year, the gala will feature participants from the last two editions of the INvisible Project, which highlighted migraine disease and rheumatoid arthritis/rheumatoid disease respectively. The INvisible Project is a print magazine and website that highlights the bravery and perseverance of pain warriors through stories and photos.

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On Feb.12 and 13, representatives from U.S. Pain Foundation proudly participated in Headache on the Hill (HOH) in Washington, DC. Now in its 11th year, HOH is an event that gathers patients, caregivers, and providers together to advocate on Capitol Hill on issues related to headache, migraine, and cluster diseases. This year marked the largest attendance with a total of over 140 advocates representing 40 states.

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On Nov. 4, CrossFit Los Altos and Focused Individual Trainers hosted its annual Fight Gone Bad fundraiser workout to support the efforts of U.S. Pain Foundation. The event was a huge success with more than 50 athletes participating and nearly 140 donors raising over $17,700 for U.S. Pain’s flagship program, the INvisible Project.

Director of CrossFit Los Altos, Rick Dyer, shared why this fundraiser is so important to him: his wife, Nicole Hemmenway — vice president of U.S. Pain Foundation — lives with complex regional sympathetic disorder, a chronic condition that causes pain. “U.S. Pain Foundation is a one-of-a-kind organization that is truly patient-focused,” says Dyers. “The work they do to share patient stories, advocate for proper treatment, and empower those living with pain is remarkable. I am thankful to our CrossFit community and gym who rallied around this cause, making the event possible.”

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Three of the INvisible Project RA/RD participants, including Leach, at far right.

The INvisible Project: rheumatoid arthritis/rheumatoid disease (RA/RD) edition is now available in print and online.

The publication includes profiles of 10 people living with RA/RD, showing the reality of life with pain, and why people with RA/RD need and deserve more help, treatment options, and research. The goal is to create public awareness and offer hope to other pain warriors living with RA/RD.

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As the flagship program of the foundation, the INvisible Project  unveils the truth about what it means to live with pain and thrive despite it. In an effort to support disease-specific communities, the latest edition of the project focuses on migraine disease — coming out just in time for Migraine and Headache Awareness Month in June! (For information about getting involved with Migraine and Headache Awareness Month, check out this article from last month’s eNews.)

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