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From left, Wade Delk of the American Society for Pain Management Nursing; Steinberg; and Elliott Warren, of the Medical Device Manufacturers Association.

As 2019 comes to a close, U. S. Pain Foundation and other advocates are making a final push for Congress to hold a hearing on the report with recommendations for best practices in pain care, released by a federal task force seven months ago. The recommendations in the report, which was mandated by Congress, run from increasing coverage of multidisciplinary therapies to developing a public education campaign to reduce stigma around chronic pain.

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On Sept. 20, National Director of Policy and Advocacy Cindy Steinberg spoke on a panel at a public meeting about chronic pain and substance use disorder at the Centers for Medicare and Medicaid (CMS) in Washington, D.C.

The goal of the meeting was to discuss CMS’s plans to address the opioid crisis and pain management. That included reviewing current efforts underway by various federal agencies, along with exploring new approaches through presentations from leading experts. (In 2018, Congress directed CMS to review its coverage and payment policies to determine whether they have resulted in incentives or disincentives that have contributed to the opioid crisis.)

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U.S. Pain Foundation recently led a group of 24 pain patient and professional organizations in sending a joint letter to U.S. Senators Lamar Alexander and Patty Murray, who lead the Senate Health, Education, Labor and Pensions (HELP) Committee, requesting that the committee hold a hearing on the final report of the Pain Management Best Practices Inter-Agency Taskforce.

The task force, comprised of 29 pain experts, was mandated by Congress to create recommendations to improve pain care while alleviating the opioid crisis in America. Cindy Steinberg, National Director of Policy and Advocacy for the U.S. Pain Foundation, was the only patient and patient group representative on the task force.

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Efforts to disseminate and begin implementing recommendations from the new report from the Pain Management Best Practices Inter-Agency Task Force (PMTF), released in May, are underway.

Most notably, according to a June 3 report from Fox News, Sen. Lamar Alexander—chair of the Senate Health, Education, Labor and Pensions Committee—said that he plans to hold a hearing before the committee that will focus on the task force’s findings. The pain community can take part in an action campaign to encourage a hearing by clicking here.

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The new report on pain management, mandated by Congress and finalized on May 30, is an important milestone for people with pain. The report emphasizes the need for access to affordable, multidisciplinary care, and urges an individualized approach to pain management–instead of broad one-size-fits-all limits and policies.

But how do we move it forward from a piece of paper to actual change?

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The new report on pain management, mandated by Congress, has the potential to improve pain care for millions of Americans. But how do we move it forward from a piece of paper to actual change?

To learn how you can help, please join us this Wednesday, May 22, at 12 pm EST for a special webinar with Cindy Steinberg, U.S. Pain’s National Director of Policy and Advocacy, and the only patient and patient advocate on the task force that created the report.

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Golden, left, and Steinberg.

On May 9 and 10, the Pain Management Best Practices Inter-Agency Task Force–an advisory group convened by Congress and overseen by U.S. Department of Health and Human Services (HHS)–held its last public meeting to finalize a report on improving pain care in America. The task force, comprised of 29 members, includes Cindy Steinberg, U.S. Pain’s National Director of Policy and Advocacy, the only patient and patient advocacy representative.

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An incredible 6,000 groups and individuals stepped up to give feedback on the draft report from the Pain Management Best Practices Inter-Agency Task Force during the comment period that ended April 1. Among the groups was a coalition of pain-patient related organizations, including U.S. Pain Foundation, which submitted a united letter outlining their feedback.

On May 9 and 10, the task force will hold its last public meeting to vote on the final version of the report and discuss plans to disseminate it. The meeting will run from 10 am to 5:30 pm EST Thursday and from 9 am to 12 pm EST on Friday in Washington, D.C.

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The 90-day public comment period for the Pain Management Best Practices Inter-Agency Task Force’s (PMTF) draft report came to a close April 1, with more than 6,000 individuals and organizations submitting feedback.

Among those to comment was the Consumer Pain Advocacy Task Force (CPATF), a coalition of pain patient-related nonprofits, including U.S. Pain Foundation, which submitted a 25-page joint letter. In addition to U.S. Pain Foundation, the CPATF letter was signed by the Center for Practical Bioethics; CHAMP (Coalition For Headache And Migraine Patients); Chronic Pain Research Alliance; For Grace: Women In Pain; Global Healthy Living Foundation; Headache and Migraine Policy Forum; International Pain Foundation; Interstitial Cystitis Association; RSDSA (Reflex Sympathetic Dystrophy Syndrome Association); and The Pain Community.

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Last week, the Consumer Pain Advocacy Task Force (CPATF)–a coalition of pain patient-related nonprofits, including U.S. Pain Foundation–submitted a letter to Department of Health and Human Services (HHS) Secretary Alex Azar regarding the draft report on pain released by the HHS Pain Management Best Practices Inter-Agency Task Force.

The CPATF also plans to submit a longer letter to the federal docket with more specific feedback by April 1.

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