According to Tufts University, 37 percent of research sites do not meet their enrollment goals for scientific studies. But enrollment is critical to clinical research and uncovering potential treatment advances.

Jennie Latson, a 39-year-old from Houston, TX, has battled the pain and burden of migraine for more than 25 years. Her relentless quest to find relief led her to a clinical trial in August 2018, which changed her life.

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U.S. Pain Foundation recently spearheaded a joint letter to the U.S. House Energy and Commerce (E&C) Committee and the E&C Health and Oversight Subcommittees requesting that they convene a hearing about the pain provisions in the SUPPORT for Patients and Communities Act and the recommendations released in May 2019 by the Department of Health and Human Services Pain Management Best Practices Inter-Agency Task Force. The letter was signed by 30 patient and professional groups.

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New York, NY – Nov. 21, 2019 – The US Pain Collaborative, comprised of advocacy leaders from across the pain community, today announced the publication of a report, titled “Chronic Pain Assessment: Patient Perspectives.” The report, driven by survey data on patient awareness and satisfaction with current chronic pain assessment instruments, provides patient-informed recommendations that should be taken by physicians, patients, and advocacy organizations immediately to improve the lives of people living with chronic pain. The full report can be found HERE.

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U.S. Pain Foundation was one of six patient advocacy groups to collaborate on a survey to understand patient awareness of and satisfaction with chronic pain assessment methods. More than 2,700 people living with a variety of chronic pain conditions responded, and the results revealed that the impact of chronic pain on patients’ lives is not adequately, consistently, or uniformly measured.

“Our findings reveal a vast area for improvement in the way chronic pain is assessed and subsequently managed by healthcare professionals,” said Cindy Steinberg, National Director of Policy an Advocacy for U.S. Pain Foundation. “Better assessment tools and a wider range of questions on the part of healthcare providers, if appropriately acted upon by healthcare practitioners, could lead to significant improvements in the management of patients’ pain.”

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The Interagency Pain Research Coordinating Committee (IPRCC), the nation’s highest pain policy advisory committee, held its biannual meeting Oct. 23 at the National Institutes of Health (NIH) campus in Bethesda, MD.  The IPRCC is the committee that oversaw the development of the National Pain Strategy, as well as the recently released Federal Pain Research Strategy. U.S. Pain Foundation’s National Director of Policy and Advocacy Cindy Steinberg, a member of the IPRCC, was in attendance.

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U.S. Pain’s National Director of Policy and Advocacy, Cindy Steinberg, was invited to present the patient perspective at the National Institutes of Health (NIH) 12th Annual Pain Consortium Symposium on May 31 and June 1. Each year, noted researchers working in the field of pain management are invited to present their research findings and an award is given to a junior investigator who has done outstanding pain research.This year, the theme was, “Multidisciplinary Strategies for Pain Management.”

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A federal bill two years in the making, the 21st Century Cures Act, was signed into law Dec. 13 by President Obama. U.S. Pain Foundation stood with more than 15 other organizations—including the National Organization for Rare Disorders, Global Genes, and the Genetic Alliance—to support the act. The $6 billion law will expand funding for medical research, invest in mental health resources and combat the opioid drug epidemic.

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