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We are delighted to share the dates and location of the next Pediatric Pain Warrior weekend retreat: May 24-26 at Morgan’s Wonderland in San Antonio, TX.

Morgan’s Wonderland is an ultra-accessible family fun park with rides and activities for kids of all ages and abilities. Like with the inaugural 2018 retreat, the weekend will bring together children with pain and their families for a weekend of education, support, and fun.

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A new video about the Pediatric Pain Warrior retreat in Disney World is now available. Held last November, the weekend brought together 142 kids with pain and their family members from across the country. The event was the official kick-off of U.S. Pain’s new Pediatric Pain Warrior program, which is dedicated to the unique needs of children with chronic illnesses and their loved ones.

The video was created by Yellow Dog Productions and highlights the kids’ experiences and why the weekend mattered to them.

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Last weekend, more than 125 kids with chronic pain and their families traveled from across the country for the first-ever Pediatric Pain Warrior retreat in Disney World. The event was the official kick-off of U.S. Pain’s new Pediatric Pain Warrior program, which is dedicated to the unique needs of children with chronic illnesses and their loved ones.

The weekend included plenty of opportunities for fun, like dinner with Mickey Mouse and a scavenger hunt, but the focus was education and empowerment. Saturday featured a full day of presentations ranging from the importance of talking about pain and sharing your story to tips for living with common pain conditions, like Ehlers-Danlos syndrome and complex regional pain syndrome. The retreat also celebrated the release of the INvisible Project: Pediatric second edition, which will be available online in the coming weeks.

Most important, however, the event was a time for kids with pain and their family members to connect with others like them, share their experiences, and realize they’re not alone.

Here are some of the comments from attendees:

  • “We laughed, shed tears, bonded together with new and old friends in ways only people living with pain could understand, and celebrated the warriors and their wins. We are grateful as a family to have had the opportunity to be included. We cherished each moment of the event and look forward to the ripple effects in the future. Thank you to everyone who made this a memorable and special weekend.” 
  • “Casey and Tyler. I can’t begin to tell you what this meant to us. The invaluable information at the conference itself, the beautiful new friendships we’ve forged, the deepening of current connections, the overall comradery, and the downright FUN will never be forgotten.”
  • “Words cannot express the amount of gratitude we have for all that made this weekend possible. We have so many unforgettable moments with so many unique folks. Again, so many emotions I wish I could portray into words. Big, huge heartfelt stuff all weekend. From the first night at Mickey’s Backyard Barbecue to the last night, l was either in tears or in goosebumps.”
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    On Oct. 20, more than 60 pain warriors from the greater Chicago area attended U.S. Pain’s eighth Take Control of Your Pain event. Take Control of Your Pain is a series of free educational days for people with pain and their caregivers. The events, held in locations across the country, bring together pain warriors with experts in a variety of fields related to pain management. The events also are a chance for people with pain to connect with one another and meet with U.S. Pain representatives.

    The Chicago event featured seven different presentations and workshops:

  • “Coping with the Psychological Impact of Chronic Pain” with Melissa Geraghty, PsyD, a clinical health psychologist;
  • “Pain, Science, and Self-Efficacy: Understanding and Changing Pain” with Kandra Hilton, PT, DPT, MS. a physical therapist at Entropy Physiotherapy and Wellness;
  • “Be Heard: Tips from a Policy Geek and Pain Warrior” with Katy Brennan
, an intern with state government and an INvisible Project participant;
  • “Using Your Voice to Impact Change” with Tiffany Westrich-Robertson, CEO and Founder, International Foundation for Autoimmune & Autoinflammatory Arthritis;
  • “Yoga and Movement for Pain” with Rachel Horcher, LMT, a licensed massage therapist and yoga teacher;
  • “The Transformative Power of Words and Story” with Elizabeth Turner, a journalist and therapeutic writing facilitator at e3 (*encourage* empower* equip); and
  • “Medical Marijuana For Pain Management” with Jose Gonzalez Jr., executive director of Educated Alternative.
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    Take Control of Your Pain: Boston is a little over one week away! Take Control of Your Pain events are free, daylong seminars for people with pain and their caregivers to hear from experts in pain management and connect with other pain warriors. The event, which is cohosted by U.S. Pain and the Academy of Integrative Pain Management in conjunction with the academy’s annual conference, will take place Nov. 10 from 10 am to 3:30 pm at the Joseph B. Martin Conference Center at Harvard Medical School.

    The day will feature talks ranging from a renowned pain specialist offering insight into communicating with your care team, to the perspective of a Boston Marathon survivor and pain warrior, to live demonstrations with a new virtual reality program for pain management.

    In addition to educational presentations and workshops, attendees will have the chance to win one of five exciting prizes: a Quell device starter kit ($299 value); an Oska Pulse device ($399 value); one of two Ergo21 seat cushions valued ($80 value each); and an Aloe MD gift basket.

    Please note that the event is created with pain warriors in mind. There will be numerous breaks for rest and stretching. In addition, attendees are encouraged to bring any assistive devices or supports that will help make them comfortable, whether special pillows, chairs, braces, etc.

    To see the full agenda or to register, click here. Registration closes Nov. 5.

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    Take Control of Your Pain Days are a chance to learn about the latest advances in pain management, research, and other helpful resources from leading experts — while connecting with fellow pain warriors. U.S. Pain is co-hosting two upcoming Take Control of Your Pain Days: on Oct. 20 in Chicago, IL, and on Nov. 10 in Boston, MA.

    The events are free and open to all. Lunch will be provided. For more details or to register, visit https://uspainfoundation.org/tcoyp/.

    Take Control of Your Pain: Chicago

    Saturday, October 20, 2018

    9 AM – 3 PM

    Chicago Marriott Midway

    6520 South Cicero Avenue

    Chicago, IL 60638

    This event is being co-hosted by Global Healthy Living Foundation and International Foundation for Autoimmune and Autoinflammatory Arthritis, with additional support from the Lupus and Allied Diseases Association and the National Infusion Center Association.

    Register here.

    Take Control of Your Pain: Boston

    Saturday, November 10, 2018

    10 am – 3:30 pm

    Joseph B. Martin Conference Center at Harvard Medical School

    77 Avenue Louis Pasteur

    Boston, MA 02115

    This event being is co-hosted by the Academy of Integrative Pain Management.

    Register here.

     

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