A high-ranking federal task force has released its much-anticipated draft report with recommendations for improving the management of chronic and acute pain. The public is being asked to provide feedback on the report by April 1.

On Jan. 16, Cindy Steinberg, National Director of Policy and Advocacy for U.S. Pain Foundation and the only patient and patient advocacy representative on the task force, presented a webinar on the report, why it matters and how to weigh in.

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By Brent Wells, DC, a chiropractor and founder of Better Health Chiropractic

If your child feels tired and achy, you may not worry initially. After all, there’s nothing urgent about what seems to be mild, general discomfort. However, if your child is constantly in pain, exhausted, having trouble sleeping, and experiencing intense moods, he/she may have fibromyalgia.

This condition is fairly common in adults, but parents and clinicians may overlook the possibility of juvenile primary fibromyalgia syndrome — that is, fibromyalgia in children.

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It can seem, sometimes, like the federal government is weighing in on pain care without understanding what patients go through. Fortunately, a new task force charged with creating recommendations for pain management has worked hard to include the patient perspective.

This task force, called the Pain Management Best Practices Intra-Agency Task Force, recently released a much-anticipated draft report with recommendations for managing acute and chronic pain. After a 90-day public comment period ending April 1, the report will be finalized and submitted to Congress.

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Update: As of January 4, 2019, U.S. Pain’s charitable solicitation registration was renewed by the Connecticut Department of Consumer Protection.

The U.S. Pain Foundation has filed and publicly shared its 2016 and 2017 Form 990 Information Returns. The 990 Returns show misappropriation of U.S. Pain’s funds by the founder and former CEO, totaling almost $1.9 million over the course of three years, from 2015 to 2017.

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Here’s to 2019

A message from interim CEO Nicole Hemmenway.

Dear pain warriors,

As many of you know, 2018 was a challenging year for U.S. Pain Foundation. In spite of the obstacles, it was still a year full of progress and growth for the organization. I wanted to take a moment to look back over the last 12 months with you.

One of the things people with pain desperately need is to understand they are not alone and that there is always hope. With that in mind, we held two support group leader training weekends in Chicago and Phoenix this spring, and grew our support group network offerings nationally throughout the year.

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