The new report on pain management, mandated by Congress, is an important milestone for people with pain. The report emphasizes the need for access to affordable, multidisciplinary care, and urges an individualized approach to pain management–instead of broad one-size-fits-all limits and policies.
But how do we move it forward from a piece of paper to actual change?
Action is essential
Getting Congress to pay attention is vital. To do that, we need you to flood your legislators with emails and calls. It’s especially important we reach out to members of the Senate Health, Education, Labor, and Pensions Committee and members of the House Energy and Commerce Committee’s Health Subcommittee.
By Janet Jay
Finding a new doctor or other medical professional can be incredibly daunting– not only do you want to find someone good, but you have to also factor in cost, insurance, distance, compatibility, background, and dozens of other factors.
Luckily, knowing some basic search strategies can make your quest much easier and less stressful. Don’t let the pressure of trying to find a doctor keep you from getting treatment. You deserve a good medical team and are within your rights to keep looking until you find the right fit!
For immediate release
Contact: Casey Cashman at 908-442-3257 or pediatricpainwarrior@uspainfoundation.org
San Antonio, TX (May 20, 2019)—Childhood is supposed to be carefree. But for the millions of kids navigating the challenges of living with painful conditions like fibromyalgia or juvenile arthritis, that’s not necessarily the case.
To help support children with chronic pain and their families, on May 24 to 27, the U.S. Pain Foundation will host its second Pediatric Pain Warriors Retreat at Morgan’s Wonderland in San Antonio, TX.
The new report on pain management, mandated by Congress, has the potential to improve pain care for millions of Americans. But how do we move it forward from a piece of paper to actual change?
To learn how you can help, please join us this Wednesday, May 22, at 12 pm EST for a special webinar with Cindy Steinberg, U.S. Pain’s National Director of Policy and Advocacy, and the only patient and patient advocate on the task force that created the report.
Today, the Pain Management Best Practices Inter-Agency Task Force–a high-ranking group convened by Congress and overseen by U.S. Department of Health and Human Services (HHS)–held the first part of its last public meeting to finalize a report on improving pain care in America. The task force, comprised of 29 members, includes Cindy Steinberg, U.S. Pain’s National Director of Policy and Advocacy, the only patient and patient advocacy representative.
An incredible 6,000 groups and individuals stepped up to give feedback on the draft report from the Pain Management Best Practices Inter-Agency Task Force during the comment period that ended April 1. Among the groups was a coalition of pain-patient related organizations, including U.S. Pain Foundation, which submitted a united letter outlining their feedback.
On May 9 and 10, the task force will hold its last public meeting to vote on the final version of the report and discuss plans to disseminate it. The meeting will run from 10 am to 5:30 pm EST Thursday and from 9 am to 12 pm EST on Friday in Washington, D.C.
By Lisa Ann Smalls
Pain and sleep are two vital functions our bodies need to work effectively. Pain lets us know something is wrong somewhere in our system. Sleep gives or bodies the chance to restore and revitalize itself. The problem when pain impacts sleep is that it can become a vicious cycle – chronic pain can lead to a sleep debt, and not enough sleep can make pain worse.
The problem with pain and sleep
People with pain experience disruptions to sleep that are 80 percent worse than the rest of the population. Unsurprisingly, pain can make it difficult to fall asleep as well as stay asleep. According to a poll conducted by the National Sleep Foundation, people suffering from chronic pain have a sleep debt of 42 minutes each night due to their pain, and people with acute pain have a sleep debt of 14 minutes per night. Over time, this sleep debt accrues. It can exacerbate a person’s pain, wreak havoc with their immune system, and even increase their risk of other chronic conditions, like obesity, heart disease, and diabetes.
But why is that? And how can you figure out which medications work well for you?
At our next Pain Education Portal (PEP) Talk webinar on May 21 at 1 pm EST, we’ll learn about all this and more with Dan Doherty, an expert in drug sensitivities with Genelex.
Dan will talk about the science of how medications work in the body, why we react differently to them, and how pharmacogenetic testing can help.
Last month, the Food and Drug Administration (FDA) and Centers for Disease Control and Prevention (CDC) reacted to the unintended harm to people living with chronic pain as a result of policy measures intended to ameliorate the opioid crisis.
On April 9, the FDA issued a Safety Announcement citing “serious harm,” including “withdrawal symptoms, uncontrolled pain, psychological distress and suicide” as a result of sudden discontinuation or rapid dose decreases in opioid pain medication. The FDA will now require changes to the prescribing information for health care professionals that will provide guidance on how to safely reduce or taper patients off opioid medications. The agency states that there is no standard opioid tapering schedule; rather, a schedule must be tailored to each patient’s unique situation considering a variety of factors, including the type of pain the patient has.
City & State: Albany, CA
Age: 45
Pain warrior role: U.S. Pain advocate since 2018
What type of health conditions you live with: chronic migraine disease, IBS, anxiety
What is your favorite tip for others with chronic pain: “Be proactive. Being proactive about my treatment has given me back a sense of control. It has been helpful for me to learn about my conditions and to find ways that my actions and thinking can influence their severity. Chronic pain is not something that I have been able to deal with on my own. I’ve had to reach out and get support from my family and friends, therapists, healthcare providers, and an understanding community of other people with chronic pain conditions. I’ve had to learn new skills, develop new relationships, and embrace healthy habits in order to live each day with as little pain and as much joy as possible.”