Living with a chronic condition can often feel like navigating an unfamiliar road without a map. But disease...
Blog Articles
My Daughter’s Pain Is Invisible – She Is Not
Have you ever listened to the hysterical sobs of your child demanding to know if they are going to hurt forever? Or...
25 Years, Still Standing: My Story of Pain and Perseverance
Living with chronic pain is a journey I never expected to take, and certainly not one that would span more than two...
Our Journey Through The World of Chronic Pain Seeking Relief
Almost 20 years ago, my wife Ellen was diagnosed with a rather rare medical condition called Ehlers-Danlos syndrome...
Melissa Geraghty, PsyD, Brings Lived Experience, Years of Clinical Work to U.S. Pain Team
This week, U.S. Pain Foundation welcomes Melissa Geraghty, PsyD (Dr. G), to its team as the organization's new...
You Get to Say Sorry; I Live With the Damage from Your Actions
The other day, I was in the pool kicking on my back and sculling with my hands on my side, which is all my body can...
Medically Complex? Tips to Prepare for an Emergency or Planned Hospitalization
I live with two incurable conditions that have led to many experiences in the hospital. Along the way, I have learned...
My Unexpected Solution for Peace of Mind
I love the moments in life that can be so peaceful, rewarding, interesting, and, at times, so unexpected. But, when...
Disability Pride Month: Challenging Stereotypes, Championing Inclusivity, and Changing the Conversation on Disability
Disability Pride Month, which takes place each July, challenges the stereotype of defining individuals by their...
The Importance of Pride Year-Round: LGBTQ+ Pain Patients On Forming Communities and Speaking out
Although LGBTQ+ Pride Month is usually celebrated in June, it’s important year-round to acknowledge the unique...
Turning Your Pain Into Purpose
We all face adversity at some point(s) in our lives. For many of us, the first thing we do is feel awful. That’s...
The Waiting Game: Unsettling booking delays
I am almost 73 years old and live with multiple medical complexities. When you discover measures are available to...