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New EDS Patient: Where Do I Begin?
Just diagnosed with Ehlers-Danlos syndrome? Explore guidance, symptoms, and real-life strategies to help you navigate EDS and HSD with confidence.
Learning to Savor the Small Moments
In a life shaped by chronic pain, one woman discovers unexpected peace in quiet moments—watching birds, breathing deeply, and learning to truly savor life.
Aging with Dignity and Finding New Purpose While Living with Chronic Pain
A powerful personal story of aging with chronic pain and Ehlers-Danlos syndrome—exploring loss, resilience, and finding new purpose and meaning in life.
Moving Forward Without Going Back
After injury and chronic illness changed her life, one discovers that moving forward doesn’t mean going back—it means redefining purpose and self-worth.
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Iowa patients celebrate passage of fail first reform bill into law
May 11, 2017| News
Gov. Branstad Signs HF 233 to Allow a More Transparent Overriding Process Middletown, CT, May 11, 2017 - Through the efforts of advocates and patient organizations who formed the Iowa Fail First Coalition, of which U.S. Pain Foundation is a...
Future of live-saving health coverage unknown to millions
May 8, 2017| News, Press release
FOR IMMEDIATE RELEASE: May 4, 2017 Contact -- Paul Gileno Email -- contact@uspainfoundation.org Website -- uspainfoundation.org Middletown, CT, May 4, 2017-The U.S. Pain Foundation is gravely concerned about its members who will lose their...
Pain Warrior of the Month: Dawn Stancliff
Location: Baltimore, MD Age: 37 years old Pain Warrior Role: Advocate and ambassador since 2014 Conditions: Melker-Rosenthal Syndrome, Ramsay-Hunt Syndrome, lymphadnopothy, fibromyalgia, Non-Specific Brain T-2 flair lesions, degenerative disc...
U.S. Pain relaunches educational website to Learn about your Pain
Apr 27, 2017| News
As a leading expert on various pain conditions, U.S. Pain Foundation recently relaunched its initiative, Learn about your Pain, to provide complete and timely information on hundreds of pain disorders. Learn about your Pain is a comprehensive...
Update on nonmedical switching efforts
Apr 27, 2017| News
Nonmedical switching advocacy had some major developments in April, as many state legislative sessions began to wrap up. Nonmedical switching occurs when insurers force patients off medications for financial reasons instead of medical ones. U.S....
Speaking out on federal issues
Apr 27, 2017| News
U.S. Pain submitted letters on three key federal topic this month: a proposed measure for tracking opioid abuse across health plans; the reauthorization of an act on the drug evaluation process; and whether manufacturers should be allowed to...
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