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New EDS Patient: Where Do I Begin?

Just diagnosed with Ehlers-Danlos syndrome? Explore guidance, symptoms, and real-life strategies to help you navigate EDS and HSD with confidence.

Learning to Savor the Small Moments

In a life shaped by chronic pain, one woman discovers unexpected peace in quiet moments—watching birds, breathing deeply, and learning to truly savor life.

Aging with Dignity and Finding New Purpose While Living with Chronic Pain

A powerful personal story of aging with chronic pain and Ehlers-Danlos syndrome—exploring loss, resilience, and finding new purpose and meaning in life.

Moving Forward Without Going Back

After injury and chronic illness changed her life, one discovers that moving forward doesn’t mean going back—it means redefining purpose and self-worth.

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Pain Warrior of the Month: Dawn Stancliff

Location: Baltimore, MD Age: 37 years old Pain Warrior Role: Advocate and ambassador since 2014 Conditions: Melker-Rosenthal Syndrome, Ramsay-Hunt Syndrome, lymphadnopothy, fibromyalgia, Non-Specific Brain T-2 flair lesions, degenerative disc...

Update on nonmedical switching efforts

Nonmedical switching advocacy had some major developments in April, as many state legislative sessions began to wrap up. Nonmedical switching occurs when insurers force patients off medications for financial reasons instead of medical ones. U.S....

Speaking out on federal issues

U.S. Pain submitted letters on three key federal topic this month: a proposed measure for tracking opioid abuse across health plans; the reauthorization of an act on the drug evaluation process; and whether manufacturers should be allowed to...

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