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Preparing for a New Doctor When You Live With Chronic Pain

Tips for people living with chronic pain on preparing for a first visit with a new doctor, including what information to bring and how to advocate for yourself.

The Weight We Carry: Pain, Resilience, and Recovery in Military Life

Army veteran Lexi Mitchell shares her journey with chronic pain, resilience, and the unseen cost of military life.

I am Real and Have My Life to Live with Chronic Pain. Do I have the Strength to Keep Fighting?

At 75, living with Ehlers-Danlos syndrome and chronic pain, Ellen Lenox Smith reflects on resilience, vulnerability, and the strength to keep going.

Know Someone With Pain? Check in With Them Today

Recently, while I was having a rougher day with my condition, called Ehlers-Danlos syndrome, I had this unwanted and embarrassing feeling of wishing someone would think to ask how I was doing. I find that since this challenge has been going on for me for so long,...

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Turning Your Pain Into Purpose

Turning Your Pain Into Purpose

We all face adversity at some point(s) in our lives. For many of us, the first thing we do is feel awful. That’s understandable. But what can you do after that? Can we learn to see our pain as it leads us into a new passion, project or even a more...

The Waiting Game: Unsettling booking delays

The Waiting Game: Unsettling booking delays

I am almost 73 years old and live with multiple medical complexities. When you discover measures are available to improve or even possibly sustain life, any delays receiving those measures can create tremendous added stress and anxiety. I have...

Lost and Found

Lost and Found

In 2006, two years after being diagnosed with a condition I had actually been born with called Ehlers-Danlos Syndrome, I wrote a poem (below) to establish some grounding and normalcy in my life. It had been a long, unacceptable wait to finally...

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