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In Their Own Words: The Faces Behind Pain Research
You’re the Expert: Why Lived Experience Belongs in Pain Research
From Barriers to Bridges: Making Pain Research More Inclusive
From Overlooked to Understood: Why Research Must Reflect Real Lives
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Virtual Advocacy Training Series launches
On May 26, U.S. Pain Foundation launched its first-ever Virtual Advocacy Training Series for its top pain advocates. Typically, the organization hosts advocacy trainings as in-person weekend summits, but because of the COVID-19 situation, it...
Pediatric Virtual Retreat focuses on education, family–and fun
Jun 3, 2020| News
More than 250 kids from 33 states and four countries have registered for the Pediatric Virtual Retreat. The program is offering a series of free online activities tailored to kids with pain and their loved ones over the next several months. Events...
Reminder: CDC docket deadline nearing
The June 16 deadline is rapidly approaching for submitting comments to the Centers for Disease Control and Prevention’s (CDC) official docket on pain. As covered in our May newsletter, the CDC opened this docket on April 17, requesting patients...
Join us Wednesday for “What Cluster Patients Want You to Know” in honor of #MHAM
Jun 1, 2020| News
In honor of Migraine and Headache Awareness Month, join us Wednesday for an honest conversation about cluster headache, the most painful disease known to man. Author Ashley Hattle and INvisible Project participant Joe McKay will share their...
INvisible Project: Migraine and headache 4th edition published
Jun 1, 2020| News
U.S. Pain Foundation has released the INvisible Project: Migraine and headache diseases, 4th edition, just in time for Migraine and Headache Awareness Month, which is celebrated each June. The publication highlights 10 individuals living with...
Pain Warrior of the Month: Bobbi Blades
City & State: Concord, NH Age: 65 years old Pain warrior role: U.S. Pain advocate since 2017 What type of health conditions you live with: Rheumatoid arthritis, spondylolisthesis, herniated disk, and IBS-C What is your favorite tip for others...
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