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Shape the Future of Pain Care: Take The Pain Experience Survey

Living with pain can feel isolating. But your journey matters—and your voice is needed today. By sharing your experiences (as a person with pain, parent of a child with pain, caregiver or care partner, or health care professional) through the U.S. Pain Foundation 2025...

Share What It’s Like Growing Up With Chronic Pain

Are you a kid or teen living with pain that doesn’t go away? Whether it’s CRPS, migraine, Ehlers-Danlos syndrome, juvenile arthritis, or any other condition, we know that living with chronic pain when you’re young can be really hard. You might feel like no one truly...

Treading Water with Chronic Pain in a Sea of Uncertainty

Living life with chronic pain is a constant challenge. I am sure I am not alone in experiencing many moments of feeling overwhelmed, trying to keep my head above the tumultuous water in the sea of uncertainty. We can either allow ourselves to sink into this churning...

Aging With Pain Brings New Vulnerabilities

Many of us try not to imagine ourselves hitting the later years of life. Whether we dream and plan for a life far down the road, or we still feel young and like the whole world is in front of us, age still creeps up on us, even if we don’t open our eyes to accept it....

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Turning Your Pain Into Purpose

Turning Your Pain Into Purpose

We all face adversity at some point(s) in our lives. For many of us, the first thing we do is feel awful. That’s understandable. But what can you do after that? Can we learn to see our pain as it leads us into a new passion, project or even a more...

The Waiting Game: Unsettling booking delays

The Waiting Game: Unsettling booking delays

I am almost 73 years old and live with multiple medical complexities. When you discover measures are available to improve or even possibly sustain life, any delays receiving those measures can create tremendous added stress and anxiety. I have...

Lost and Found

Lost and Found

In 2006, two years after being diagnosed with a condition I had actually been born with called Ehlers-Danlos Syndrome, I wrote a poem (below) to establish some grounding and normalcy in my life. It had been a long, unacceptable wait to finally...

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