Living with pain can feel isolating. But your journey matters—and your voice is needed today.

By sharing your experiences (as a person with pain, parent of a child with pain, caregiver or care partner, or health care professional) through the U.S. Pain Foundation 2025 Pain Experience Survey, you can help shape a future where pain care is more compassionate, effective, and inclusive. The survey opens Monday, May 5, and will only be available for a short time—so don’t wait to make your voice heard.

This national survey is one of the most comprehensive efforts to date to capture the real-world experiences of people affected by pain. It builds upon our impactful 2022 survey, A Chronic Pain Crisis, which gathered insights from more than 2,300 individuals. Those responses have helped guide advocacy initiatives, educate key stakeholders, and raise awareness of the urgent need for better pain care. Now, we’re aiming to top that number—and amplify even more voices across the pain community.

The 2025 Pain Experience Survey recognizes that pain care must be comprehensive—incorporating the perspectives of not only those experiencing pain, but also those who support and care for them. That’s why this survey includes tailored tracks for:

• Individuals with chronic pain (including a separate pediatric survey for kids and teens ages 8-17 living with pain).
• Caregivers and care partners of individuals with pain.
• Parents and guardians of children and teens with pain lasting three months or longer (if your child is older than 22 and you provide care for them, please take our caregiver survey).
• Health care professionals of all types.
• We’re also introducing a brief track for individuals with acute pain (pain that has existed for less than three months)—you’ll be directed to this track after starting the “person living with pain” survey.

Each voice is unique and offers a different lens into the challenges and opportunities for improving care. Whether you’re a person with lived experience, a parent, a caregiver, or a provider, your story helps illuminate what’s working, what’s missing, and what needs to change. And for the first time, we are inviting individuals to select multiple survey tracks if more than one applies so that you can share your full perspective.

The survey explores topics like access to care, treatment preferences, support systems, advocacy priorities, mental health, interest in clinical research, and more. Your anonymous responses—shared in aggregate only—will guide U.S. Pain in improving its programs and services, shaping research agendas, and advocating for policies that truly reflect the needs of the pain community.

Depending on which track(s) you choose, the survey may take anywhere from 5 to 35 minutes. Some questions may not apply to you and will be automatically skipped. All participation is voluntary and confidential.

We need every voice—every perspective. That includes you.

Take the survey soon, and please share it with others you know—individuals with pain, parents, caregivers, and providers—and invite them to take it as well.

Help us create a future where everyone affected by pain is seen, heard, and supported.