2018 theme: “Pediatric Pain Warriors”
Cannabis and Children: Navigating Parents Through the Stigma
Date: Nov. 15 at 7 PM
Speaker: Ellen Lenox Smith
Description:Join U.S. Pain Foundation’s Co-Director for Medical Cannabis Advocacy Ellen Lenox Smith as she breaks down the therapeutic benefits of cannabis and how it has been used in treating children afflicted with chronic illness. The presentation will include an in-depth look at cannabis components while providing guidance and support for parents considering this alternative medicine for their pediatric pain warrior.
About the presenter: Ellen Lenox Smith has emerged as a leading voice for patients living with pain. Despite living with two rare conditions (Ehlers-Danlos syndrome and sarcoidosis), she continues giving back to the pain community. As a Rhode Island ambassador for the U.S. Pain Foundation, Ellen spent a decade working as an Arthritis Foundation ambassador, serves on the board for the Rhode Island Patient Advocacy Coalition (RIPAC), and has authored two books. Ellen and her husband Stu live in Rhode Island with her service dog Maggie and an adopted rescue dog named Lily. She enjoys gardening, public speaking, writing, and spending time with her four sons, their wives, grandchildren and grand-dogs.
A Grandparent’s Voice: Advocacy and support for Chronic Pain Families
Date: Nov. 19 at 12 pm ET
Speaker: Nancy Rene
Description: While parents are often the primary caregivers for their children, especially when he or she lives with a chronic condition, grandparents can also provide a leading role to help the grandchild once he or she has been diagnosed with an incurable disease. For Nancy Rene, whose grandson has sickle cell disease, she quickly learned the benefits her family could experience through her advocacy and encouragement. Join us for this empowering webinar for grandparents to discover how they can engage in their grandchild’s pain journey.
About the presenter: Nancy Rene spent her career in education. She has served as a teacher of mathematics, school administrator, and math consultant for 36 years. In retirement, she works with various advocacy organizations, including Family Voices of California and Chronic Care Coalition of California. Nancy has served as a member of the Board of the Sickle Cell Disease Association of America. She regularly attends conferences on Sickle Cell Disease and is a Patient Advocate for the California Institute for Regenerative Medicine. She has a high school aged grandson with sickle cell disease and her granddaughter has autism and is a participant in a school to work transition program.
NEADS Presents: Service Dogs for Tweens and Teens
Date: Nov. 29 at 6 pm ET
Speakers: Katy Harrison Ostroff, LICSW, Manager of Client Services for NEADS
Description: Is your family considering a professionally trained service dog to provide assistance for a teen living with a physical disability? Join an informational webinar presented by NEADS World Class Service Dogs to learn about the benefits of Service Dogs, how they are trained, how to apply for a service dog, public access and more. NEADS is a 501 (c)(3) nonprofit that provides highly skilled Service Dogs for people who are deaf or have a physical disability.
Preventing Caregiver Burnout: Tips for Caring for the Caregiver
Speaker: Marianne St Clair, Life Coach, LMT
Description: Individuals who care for the psychological and/or physical needs of others, often fail to recognize and meet their own needs. Focusing on tending to the day-to-day needs of others can cause one to ignore their own emotional and personal well-being. This can be a key contributing factor to stress and many other problems associated with caregiver burnout. Burnout is a misunderstood illness, and Marianne will share with you her journey about burning out as the sole caregiver for her chronically ill daughter. She will also discuss recognizing the signs, burnout vs stress, coping strategies, resources, and the steps she took to recover and build the next phase of her life and career, from BURNOUT to BLISS.
About the presenter: Marianne St Clair, Your Go-To Expert on Burnout, inspires burnout women to Come Alive to a New Vibe by introducing them to savvy tools, successful strategies, and eye-opening perspectives, that allow women to reclaim their feminine power, revive their youthful radiance, enthusiasm for life, and unleash her hidden potential.