As part of CHAMP (Coalition For Headache And Migraine Patients), team members of U.S. Pain Foundation participated in RetreatMigraine: the 2020 Virtual Experience April 17-19. The weekend was originally planned for an in-person event, where 300 people living with migraine would meet for an educational conference in Redondo Beach, CA. As a result of COVID-19, the retreat has been postponed.
Despite the change in plans, CHAMP recognized the need for the migraine community to connect, learn, and lift each other up during this time, and pivoted to host RetreatMigraine as online series of educational events and discussions. During the original three days scheduled for the in-person event, interactive online content was offered for all to partake in via Facebook Live. Special content was provided for those who were planning on attending the in-person retreat.
No matter what health issue you deal with, your experience is unique. Sharing your reality and your feelings about it can help groups develop more effective treatments and interventions in the future.
CRPS Patient Survey
If you’re a pain warrior with complex regional pain syndrome (CRPS), you know that it’s poorly understood and difficult to treat. As someone who lives with it every day, you’re the expert! Sharing your knowledge and experiences is key to helping develop a more in-depth understanding of the condition.
From April 12 to 14, more than 200 people from around the world gathered in San Antonio, TX, for the first-ever RetreatMigraine conference. Produced by CHAMP (the Coalition for Headache And Migraine Patients) the three-day educational event aimed to connect those with migraine disease with information, resources, and most importantly, each other.
A member organization of CHAMP, U.S. Pain Foundation sponsored a dinner and launch party for its latest issue of the INvisible Project. The magazine–the third edition focusing on headache diseases–includes profiles of 10 inspiring individuals who are living with migraine, headache, and cluster diseases. The launch party featured large displays with photos, story summaries, and quotes from each person profiled.
It’s National Migraine and Headache Awareness Month (MHAM), and we have a number of exciting developments to kick it off, as well as numerous ways to participate. Be sure to follow U.S. Pain on Facebook and Twitter to stay up to date on the latest news, events, and ways to get involved.
First-ever migraine prevention drug approved
On May 17, the Food and Drug Administration (FDA) approved the first-ever migraine preventive drug. Often referred to as a CGRP (calcitonin gene-related peptide) or CGRP inhibitor, the drug blocks the CGRP receptor that is believed to play a role in migraine.