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Photo credit: Ashley Hattle-Cleminshaw.

From April 12 to 14, more than 200 people from around the world gathered in San Antonio, TX, for the first-ever RetreatMigraine conference. Produced by CHAMP (the Coalition for Headache And Migraine Patients) the three-day educational event aimed to connect those with migraine disease with information, resources, and most importantly, each other.

A member organization of CHAMP, U.S. Pain Foundation sponsored a dinner and launch party for its latest issue of the INvisible Project. The magazine–the third edition focusing on headache diseases–includes profiles of 10 inspiring individuals who are living with migraine, headache, and cluster diseases. The launch party featured large displays with photos, story summaries, and quotes from each person profiled.

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Voices from the Hill

By Jorie Logan-Morris and Jeannette Rotondi

Every year in February, advocates for migraine and headache disease come together in Washington, D.C., for an event known as Headache on the Hill (HOH). HOH is organized by the Alliance for Headache Disorders Advocacy (AHDA) and has been running now for 12 years.

During HOH, advocates of all kinds — migraine and headache patients, caregivers, doctors and specialists, and more — work together to lobby and meet with Congress, presenting important legislation and “asks” related to migraine and headache disease in hopes that lawmakers will support our requests. This in turn helps bring more national awareness to migraine and headache disease and ultimately further supports the millions who suffer all across the country.

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By Katie Golden

In Dr. Robert Cowan’s paper “CAM in the Real World: You May Practice Evidence-Based Medicine, But Your Patients Don’t,” he explores the notion that patients with migraine disease often incorporate complementary and alternative medicine (CAM) into their treatment regime, although it is a topic often left out of the discussion between physician and patient.

Some examples of CAM are yoga, meditation, acupuncture, massage therapy, homeopathy, biofeedback, and natural supplements.

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On Feb.12 and 13, representatives from U.S. Pain Foundation proudly participated in Headache on the Hill (HOH) in Washington, DC. Now in its 11th year, HOH is an event that gathers patients, caregivers, and providers together to advocate on Capitol Hill on issues related to headache, migraine, and cluster diseases. This year marked the largest attendance with a total of over 140 advocates representing 40 states.

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