Too often, due to broad misconceptions and a lack of understanding about pain, pain warriors are afraid or ashamed to speak up about their stories.
But the only way we can create change is if we start talking–to loved ones, coworkers, neighbors, clinicians, and even policymakers.
That’s why our theme for Pain Awareness Month 2019, which begins September 1, is “Let’s Talk about Pain.” We’ll be hosting numerous events, campaigns, and activities that center around this idea. In order to truly get the word out, though, we need your help.
Pain Awareness Month, recognized annually in September, is just two months away! The theme this year, #LetsTalkAboutPain, is about the power of sharing patient stories and experiences. More details about how to get involved with U.S. Pain’s “Storyathon” campaign will be available in the coming weeks.
In the meantime, U.S. Pain volunteers are encouraged to get involved with annual initiatives to raise awareness: obtaining proclamations from state and local governments and asking landmarks and buildings to light up in blue on Sept. 13 for Shine Blue for Pain (formerly Light Up the Landmarks). Participation in these campaigns requires advance preparation, so volunteers are urged to get started now.
Now, more than ever, it is important for people with pain need to support each other, uniting to bring awareness and understanding. Throughout September, U.S. Pain will be providing numerous opportunities for you to join us in making a positive change for pain warriors. Take a look at some of U.S. Pain’s upcoming activities and events so that you can help honor Pain Awareness Month. It’s never too late to get involved, and there’s something for everyone, no matter what your abilities or interests.
In honor of Pain Awareness Month, U.S. Pain is ramping up its online event offerings, with one event each week throughout the month of September. All of the events are free and open to the public. Some events require advance registration.=&0=&. On Sept. 5 at 2 pm EST, U.S. Pain’s NIcole Hemmenway, Interim CEO, will host a 30-minute Facebook Live event in collaboration with The Mighty. Hemmenway, who is also author of the book “It’s not in my head: From wheelchair to marathon,” and Director of the INvisible Project, will talk about how she explains her pain to others and offer tips about sharing your pain story. Check The Mighty’s Facebook page for details=&2=& =&3=&
Whether cancer or arthritis, there are thousands of chronic conditions and health issues that can affect a person during their lifetime. What do all of these conditions have in common? They cause pain.
In honor of Pain Awareness Month, which begins Sept. 1, U.S. Pain Foundation is hosting a number of events and activities that aim to bring together people with pain and create more understanding about the challenges people with pain face. The theme for the 2018 campaign is #PainWarriorsUnite.
Pain Awareness Month is exactly one month away. This year’s theme is #PainWarriorsUnite, and U.S. Pain Foundation has a range of activities, campaigns, and events set up to help unify pain warriors and increase public understanding of the obstacles patients face. Some examples include a daily social media challenge, featuring special giveaways; weekly, free educational events; an op-ed campaign; and the annual Light up the Landmarks initiative.
Op-eds, blogs, articles, and other communications are excellent platforms to create awareness and understanding for the pain community. These write-ups can be used to share individual pain journeys or the experiences of multiple people with pain. Either way, the U.S. Pain Foundation wants your voice to be heard through every possible platform.
“You have the ability to change the negative perceptions held by many people about what it means to live with pain,” says Jacki Drexel, who serves as co-director of the Pain Ambassador Network, alongside Lori Monarca. “We hope you can help U.S. Pain open a positive and productive dialogue that accurately reflects the daily battle fought by pain warriors.”
Chronic pain comes in many shades. The descriptions alone can be colorful: throbbing, shooting, aching, burning, freezing, and so many more. Pain patients rarely describe their pain by using only one of these vivid explanations. Just as there are innumerable ways to describe pain, there are countless conditions that can cause or contribute to chronic pain; each condition is represented by its own awareness ribbon color.
City & State: Petaluma, California
Age: 36 years old
Pain Warrior Role: Volunteer since 2016, ambassador since 2017
Condition: Reflex sympathetic dystrophy
Favorite tip for others with chronic pain: “Stay connected! Living with chronic pain has a profound impact on one’s life and can be completely isolating. It’s imperative to cultivate relationships with others who can relate to the unique experience of living with pain. Connecting online with the chronic pain community, attending face-to face support groups, and volunteer or advocacy work are great ways to link up with others who understand what you’re going through — first hand. Guidance from the chronic pain community can also help provide the support needed to not only live, but also thrive while living with pain. You’re not alone!”