As part of our Pain Awareness Month Storyathon, we’re collecting 3-5 minute video stories from real people with pain, talking about their personal experiences–from how they were diagnosed to how pain affects their daily life. We’ll be selecting a handful of videos to share throughout September on social media.
Remember: talking about pain is the only way we can create understanding, awareness, and most importantly: change.
U.S. Pain was one of several organizations to sponsor 30 families with children with chronic pain to attend the 2019 Pediatric Pain Family Camp at The Center for Courageous Kids in Scottsville, KY. The center is specially designed for kids with serious illnesses, offering activities for children with different abilities and an on-site medical center staffed by a full-time doctor.
The campers came together from all across the country July 21 through 25 to enjoy activities like fishing, boating, arts and crafts, and more. Most important, kids and family members had the opportunity to be with others who understand the challenges of living with pain.
City & state: Fremont, California
Pain warrior role: U.S. Pain advocate since 2018
What type of health conditions you live with: Chronic migraine disease, adrenal insufficiency, hypothyroidism, growth hormone deficiency (caused Cushing’s disease), trigeminal neuralgia, IBS, and IBD.
What is your favorite tip for others with chronic pain: “I cope by advocating. Talking about my experiences and connecting with others that have just begun navigating some of the hurdles I’ve overcome helps me feel like I’m giving back.”