Did you recently get diagnosed with Ehlers-Danlos syndrome (EDS), and feel overwhelmed and confused about where to...
News Articles
Learning to Savor the Small Moments
By Kari McBride I remember my daughter’s first steps like they were yesterday. After 18 months of appointments,...
Aging with Dignity and Finding New Purpose While Living with Chronic Pain
At the age of 54, I began a journey in life that I never imagined would be mine to take on. After years of living with...
The Weight We Carry: Pain, Resilience, and Recovery in Military Life
By Lexi Mitchell When people think about military service, they often picture discipline, strength, and resilience....
I am Real and Have My Life to Live with Chronic Pain. Do I have the Strength to Keep Fighting?
Now at the age of 75, even after years of living with Ehlers-Danlos syndrome, I still get embarrassed and disappointed...
Know Someone With Pain? Check in With Them Today
Recently, while I was having a rougher day with my condition, called Ehlers-Danlos syndrome, I had this unwanted and...
Why Holidays Bring on Anxiety: Living with Chronic Pain
Those of us who live with chronic pain don’t always approach a holiday with the same enthusiasm as others. I struggle...
In Their Own Words: The Faces Behind Pain Research
Throughout the U.S. Pain Foundation’s #KNOWresearch campaign this KNOWvember, pain scientists across the country...
You’re the Expert: Why Lived Experience Belongs in Pain Research
Pain research has traditionally involved the same step-by-step process: Develop a research question. Design a study....
From Barriers to Bridges: Making Pain Research More Inclusive
Pain research is strongest when it is inclusive and accessible to every group and population that can benefit from...
From Overlooked to Understood: Why Research Must Reflect Real Lives
Every November, the U.S. Pain Foundation brings our community together to spotlight something powerful: knowledge. We...
Staying in the Know: Why Disease Awareness Matters for Diabetes and Diabetic Peripheral Neuropathy
Living with a chronic condition can often feel like navigating an unfamiliar road without a map. But disease...