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I am Real and Have My Life to Live with Chronic Pain. Do I have the Strength to Keep Fighting?
At 75, living with Ehlers-Danlos syndrome and chronic pain, Ellen Lenox Smith reflects on resilience, vulnerability, and the strength to keep going.
Know Someone With Pain? Check in With Them Today
Recently, while I was having a rougher day with my condition, called Ehlers-Danlos syndrome, I had this unwanted and embarrassing feeling of wishing someone would think to ask how I was doing. I find that since this challenge has been going on for...
Why Holidays Bring on Anxiety: Living with Chronic Pain
Those of us who live with chronic pain don’t always approach a holiday with the same enthusiasm as others. I struggle with my emotions and increased anxiety as holidays get closer due to the potential issues they may bring on. To make it worse, it...
In Their Own Words: The Faces Behind Pain Research
Throughout the U.S. Pain Foundation’s #KNOWresearch campaign this KNOWvember, pain scientists across the country shared personal videos about the research they’re conducting—and why pain research is so important. This effort, which was made a...
You’re the Expert: Why Lived Experience Belongs in Pain Research
Pain research has traditionally involved the same step-by-step process: Develop a research question. Design a study. Write a grant. Conduct research. Analyze data. Publish findings. And the same core team generally carries out those steps: A...
From Barriers to Bridges: Making Pain Research More Inclusive
Pain research is strongest when it is inclusive and accessible to every group and population that can benefit from it—but many individuals still face barriers to participating in clinical trials and research. The obstacles inhibiting greater...
