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Let’s Go To Camp! Applications are open.

The U.S. Pain Foundation is thrilled to announce that applications are open for the 3rd Annual Pediatric Pain Warrior Family Summer Camp. This five-day summer camp will take place from June 23 to June 27, 2024, at Morgan’s Camp in San Antonio, Texas. The camp is...

Advancing Research for Chronic Pain Act Introduced in House

The U.S. Pain Foundation released its 2022 Survey Report highlighting the public health crisis that is chronic pain.

Uninformed Comment in the ER Highlights Need for Self-Advocacy

What would you do if your refuge, a place where you went to be cared for, suddenly became a place where you were dismissed, gaslit, and made to feel worse than when you arrived? If you’re like me, you would choose to leave—but what if you couldn’t? Last year, I...

Winter Snowstorms Create Mobility Challenges

When I was growing up, excitement was in the air as a snowstorm approached. The wooden slat sleds were retrieved and waxed, as we anticipated the opportunity to slide down those hills. Plans were made on the design of the snowman we would create in the front yard. It...

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Turning Your Pain Into Purpose

Turning Your Pain Into Purpose

We all face adversity at some point(s) in our lives. For many of us, the first thing we do is feel awful. That’s understandable. But what can you do after that? Can we learn to see our pain as it leads us into a new passion, project or even a more...

The Waiting Game: Unsettling booking delays

The Waiting Game: Unsettling booking delays

I am almost 73 years old and live with multiple medical complexities. When you discover measures are available to improve or even possibly sustain life, any delays receiving those measures can create tremendous added stress and anxiety. I have...

Lost and Found

Lost and Found

In 2006, two years after being diagnosed with a condition I had actually been born with called Ehlers-Danlos Syndrome, I wrote a poem (below) to establish some grounding and normalcy in my life. It had been a long, unacceptable wait to finally...

2022 annual report is now available

2022 annual report is now available

Chronic pain is vastly under-recognized, underfunded, and under-treated when considering its significant impact on American lives. Research, treatment options, and support for those affected individuals still lag behind other major diseases.  This...

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