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Rare Disease Day is Feb. 28
The National Organization of Rare Disorders’ (NORD) yearly Rare Disease Day will be observed on Feb. 28, 2019. Rare Disease Day is an annual celebration the 25-30 million Americans living with one of the over 7,000 rare or orphan diseases. One in...
Should Social Security Disability Insurance change how they consider pain?
Social Security Disability Insurance (SSDI) can be a lifeline for individuals who are disabled by chronic pain. If approved, it can provide monthly insurance benefits to those whose disabilities are so severe that they cannot work a substantial...
Check out new video from the pediatric Disney retreat
A new video about the Pediatric Pain Warrior retreat in Disney World is now available. Held last November, the weekend brought together 142 kids with pain and their family members from across the country. The event was the official kick-off of U.S....
Learn about school accommodations for your child
Navigating school systems on your child's behalf can be overwhelming and confusing. On Jan. 28 at 12 pm EST, the Pediatric Pain Warrior Program will host a webinar, "School accommodations: A parent's guide," to help parents and caregivers...
We’re breaking down patient advocacy. Are you in?
On Jan. 31, U.S. Pain Foundation's Advocacy Network will host a free training session for existing advocates and interested volunteers to learn what it means to be a patient advocate. Attendees will learn about issues impacting Americans with...
High schooler to build on $100,000 raised for children with pain through basketball games Jan. 24 & 29
Most 16 year olds are focused on their cellphones and televisions. But not 16-year-old Tyler Cashman, of Tewksbury, N.J. Tyler will host two “Points for Pain” fundraiser basketball games at Old Turnpike Middle School on Jan. 24 at 5 pm and at...
