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9 Lessons We’ve Learned By Listening to Thousands of People With Pain
What can we learn by truly listening to people living with pain? 9 lessons from thousands of people living with pain reveal what matters most in pain care, support, access, research, and lived experience.
Frustrating. Lonely. Exhausting. Three Words That Capture Life With Pain.
People living with chronic pain were asked to describe their pain journey in just three words. Their responses reveal both shared realities and deeply personal experiences.
Lonely Hearts: A Poem
In “Lonely Hearts,” Molly Kamper reflects on pain, isolation, and the connection that can come from making space for one another’s experiences.
More Than Tired: The Exhaustion of Living With Pain
Chronic pain can make exhaustion about far more than a lack of sleep. Nikhil Sadavarte reflects on the disrupted rest, constant calculations, and determination it takes to keep moving forward.
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Pain Warrior of the Month: Nancy Harris Bonk
Full name: Nancy Harris Bonk City & state: Buffalo, NY Age: 56 Pain warrior role: U.S. Pain advocate since 2014 Type of health conditions: Migraine disease, intracranial hypertension, fibromyalgia to name a few! Favorite tip for others with...
Rare Disease Day is Feb. 28
Jan 31, 2019| News
The National Organization of Rare Disorders’ (NORD) yearly Rare Disease Day will be observed on Feb. 28, 2019. Rare Disease Day is an annual celebration the 25-30 million Americans living with one of the over 7,000 rare or orphan diseases. One in...
Should Social Security Disability Insurance change how they consider pain?
Jan 31, 2019| News
Social Security Disability Insurance (SSDI) can be a lifeline for individuals who are disabled by chronic pain. If approved, it can provide monthly insurance benefits to those whose disabilities are so severe that they cannot work a substantial...
Check out new video from the pediatric Disney retreat
Jan 31, 2019| News
A new video about the Pediatric Pain Warrior retreat in Disney World is now available. Held last November, the weekend brought together 142 kids with pain and their family members from across the country. The event was the official kick-off of U.S....
Learn about school accommodations for your child
Jan 23, 2019| News
Navigating school systems on your child's behalf can be overwhelming and confusing. On Jan. 28 at 12 pm EST, the Pediatric Pain Warrior Program will host a webinar, "School accommodations: A parent's guide," to help parents and caregivers...
We’re breaking down patient advocacy. Are you in?
On Jan. 31, U.S. Pain Foundation's Advocacy Network will host a free training session for existing advocates and interested volunteers to learn what it means to be a patient advocate. Attendees will learn about issues impacting Americans with...
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