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9 Lessons We’ve Learned By Listening to Thousands of People With Pain
What can we learn by truly listening to people living with pain? 9 lessons from thousands of people living with pain reveal what matters most in pain care, support, access, research, and lived experience.
Frustrating. Lonely. Exhausting. Three Words That Capture Life With Pain.
People living with chronic pain were asked to describe their pain journey in just three words. Their responses reveal both shared realities and deeply personal experiences.
Lonely Hearts: A Poem
In “Lonely Hearts,” Molly Kamper reflects on pain, isolation, and the connection that can come from making space for one another’s experiences.
More Than Tired: The Exhaustion of Living With Pain
Chronic pain can make exhaustion about far more than a lack of sleep. Nikhil Sadavarte reflects on the disrupted rest, constant calculations, and determination it takes to keep moving forward.
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INvisible Project: RA/RD edition released
Jul 27, 2017| News
The INvisible Project: rheumatoid arthritis/rheumatoid disease (RA/RD) edition is now available in print and online. The publication includes profiles of 10 people living with RA/RD, showing the reality of life with pain, and why people with RA/RD...
Speaking out on health care reform
Jul 27, 2017| News
On July 25, the Senate voted to start debate on several proposed bills that aim to repeal and replace the Affordable Care Act (ACA). While it remains unclear what the final version of the bill will look like, every proposal so far would likely have...
Roundtable discusses benefits of abuse-deterrent formularies
Jul 27, 2017| News
Shaina Smith, U.S. Pain director of State Advocacy & Alliance Development, was among several panelists who gathered July 20 in Concord, N.H., to discuss the findings of a draft report on abuse-deterrent formularies (ADFs), or pain medications...
CT law to end prohibition on pharmacists sharing cost-saving information
Jul 27, 2017| News
On July 10, Connecticut Gov. Daniel Malloy signed into law Senate Bill 445, which creates a more transparent process for the patient when paying for prescriptions at the pharmacy. "This would not have been possible without the persistence and...
Take action on medical cannabis access
Jul 27, 2017| News
U.S. Pain encourages advocates to take action to support the Compassionate Access, Research Expansion, and Respect States (CARERS) Act (S.1374/H.R.2920) by sending a letter to their legislators (click here to contact your legislator). The bill...
Ty Cashman’s pointers on hosting a Points for Pain game
Jul 27, 2017| News
Ty Cashman, U.S. Pain’s director of Pediatric Fundraising, has been getting a lot of attention thanks to his much-deserved recognition from the Yankees during HOPE Week in June. Most recently, Cashman was highlighted in a short documentary...
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