Fern (center) and her husband, David, at Beulah Beach in Vermilion, Ohio, with some of their closest friends—their...
Blog Articles
Tom Norris
Tom and his wife, Marianne, at their 25th anniversary vow renewal in 2013.Our Voices Matter: Don’t Conduct Research...
Eden Buell
When Eden’s mother, Kelly, needed a quick change of clothing while at dialysis, Eden’s husband, Markus, bought this...
No Stone Unturned: How to Navigate Clinical Trials
By Rebecca McKinsey Lindsey Wahlstrom and her daughter, Rona Edwards, during one of the clinical trials they...
7 Tips for Bringing up Trials with Your Doctor
By Tom Norris For those of us living with chronic pain, being overlooked is part of the experience. But your voice...
The Role of an IRB: Safeguarding Research Participants
By Kirsten Ellis Studying pain—or conducting any type of research involving people—requires a system of checks and...
Real-World Evidence: The On-The-Ground Complement To Clinical Trial Findings
By Jill Waldbieser For decades, clinical trials—and specifically, randomized controlled trials (RCTs)—have been the...
From Patchwork to Progress: How Population Data can Drive Chronic Pain Solutions
By Rebecca McKinsey Policy steers clinical research priorities. Economic burden provides the fuel. And data turns the...
Staying in the Know: Why Disease Awareness Matters for Diabetes and Diabetic Peripheral Neuropathy
Living with a chronic condition can often feel like navigating an unfamiliar road without a map. But disease...
Licensed to Treat, Unprepared for Pain
Even though pain is the #1 reason Americans seek medical care—with chronic pain affecting one in four U.S. adults—most...
My Daughter’s Pain Is Invisible – She Is Not
Have you ever listened to the hysterical sobs of your child demanding to know if they are going to hurt forever? Or...
Parents of Kids with Pain: Burned Out, Broke, and Desperate for Support
Pediatric chronic pain doesn’t just affect the children experiencing it—it transforms the lives of their entire...