Now at the age of 75, even after years of living with Ehlers-Danlos syndrome, I still get embarrassed and disappointed...
Blog Articles
Know Someone With Pain? Check in With Them Today
Recently, while I was having a rougher day with my condition, called Ehlers-Danlos syndrome, I had this unwanted and...
Why Holidays Bring on Anxiety: Living with Chronic Pain
Those of us who live with chronic pain don’t always approach a holiday with the same enthusiasm as others. I struggle...
Staying in the Know: Why Disease Awareness Matters for Diabetes and Diabetic Peripheral Neuropathy
Living with a chronic condition can often feel like navigating an unfamiliar road without a map. But disease...
Licensed to Treat, Unprepared for Pain
Even though pain is the #1 reason Americans seek medical care—with chronic pain affecting one in four U.S. adults—most...
My Daughter’s Pain Is Invisible – She Is Not
Have you ever listened to the hysterical sobs of your child demanding to know if they are going to hurt forever? Or...
Parents of Kids with Pain: Burned Out, Broke, and Desperate for Support
Pediatric chronic pain doesn’t just affect the children experiencing it—it transforms the lives of their entire...
25 Years, Still Standing: My Story of Pain and Perseverance
Living with chronic pain is a journey I never expected to take, and certainly not one that would span more than two...
Unmasking Pain in California: Why We Must See the Invisible
I was stunned, though not entirely surprised, when the bus driver demanded, “You don’t look disabled. What is your...
Lying Down on the Job and the Importance of Storytelling
With every chronic pain diagnosis comes a story. For some, it reads like a mystery novel—the patient races against...
Untrained, Unprepared, Unheard: The Education Crisis in Pain Caregiving
The invisible backbone of chronic pain care is barely staying afloat. Across the United States, millions of unpaid...
More Than Tired: The Overlooked Role of Sleep in Pediatric Pain
Sleep is supposed to be a refuge—a time when a child’s body restores and recharges. But for children living with...