According to Tufts University, 37 percent of research sites do not meet their enrollment goals for scientific studies. But enrollment is critical to clinical research and uncovering potential treatment advances.

Jennie Latson, a 39-year-old from Houston, TX, has battled the pain and burden of migraine for more than 25 years. Her relentless quest to find relief led her to a clinical trial in August 2018, which changed her life.

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June is Migraine and Headache Awareness Month (#MHAM)! A large percentage of our community lives with migraine and headache diseases, whether as the primary cause of their pain or a comorbidity.

Nationwide, headache and migraine diseases affect 47 million Americans. Despite their huge impact, these conditions are often overlooked and downplayed as “It’s just a headache.”

But we know it is far more than simply head pain. Headache and migraine diseases are complex, debilitating, and symptoms can affect your entire body.

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In honor of Migraine and Headache Awareness Month, on June 24, Jaime Michele Sanders (aka The Migraine Diva) will lead a diverse panel of fellow INvisible Project participants in tackling the issue of health care disparities. Nim Lalvani (Executive Director of American Migraine Foundation), Isiah Lineberry (health policy exert and a caregiver for his wife and two daughters, who live with migraine), and LaQuinda Mccoy (a patient advocate for migraine and other diseases, and a former nurse) will share how discrimination and implicit bias has negatively impacted their access to appropriate medical treatment.

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Have you ever wanted to find a way to better communicate with your doctor, get the most out of your visits, and maximize your treatment plan?

If yes, please join us this Thursday, June 13, at 7 pm EST for an intimate conversation between neurologist and headache specialist Abby Chua, DO, and patient advocate Katie Golden. Dr. Chua and Katie will discuss what patients and doctors can learn from one another, and offer tips for interacting.

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FOR IMMEDIATE RELEASE
Contact: Nicole Hemmenway at nicole@invisibleproject.org

Middletown, CT (June 1, 2019)– In time for Migraine & Headache Awareness Month, U.S. Pain Foundation has released its third edition of the INvisible Project focusing on headache and migraine diseases. The publication depicts the reality of life with pain, and why people living with headaches diseases need and deserve more help, treatment options, and research. It also serves as an inspiration to those living with the disease, offering hope and resources.

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Migraine, headache, and cluster diseases affect more than 38 million Americans. To increase understanding and empathy for those with these disorders, U.S. Pain Foundation and CHAMP (the Coalition For Headache And Migraine Patients) need your help during National Migraine & Headache Awareness Month (#MHAM). The theme this year is #SowingtheSeeds.

MHAM began June 1, so jump in as soon as you can! You can get involved in the following ways:

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Voices from the Hill

By Jorie Logan-Morris and Jeannette Rotondi

Every year in February, advocates for migraine and headache disease come together in Washington, D.C., for an event known as Headache on the Hill (HOH). HOH is organized by the Alliance for Headache Disorders Advocacy (AHDA) and has been running now for 12 years.

During HOH, advocates of all kinds — migraine and headache patients, caregivers, doctors and specialists, and more — work together to lobby and meet with Congress, presenting important legislation and “asks” related to migraine and headache disease in hopes that lawmakers will support our requests. This in turn helps bring more national awareness to migraine and headache disease and ultimately further supports the millions who suffer all across the country.

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While National Migraine and Headache Awareness Month (MHAM) wrapped up in June, U.S. Pain Foundation is continuing to raise awareness through its traveling display of the INvisible Project: Migraine second edition. Below is a photo recap of June and the ongoing efforts to bring about change for people living with headache and migraine disease.

End of May
The INvisible Project: Migraine second edition was released in time for MHAM.

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It’s National Migraine and Headache Awareness Month (MHAM), and we have a number of exciting developments to kick it off, as well as numerous ways to participate. Be sure to follow U.S. Pain on Facebook and Twitter to stay up to date on the latest news, events, and ways to get involved.

First-ever migraine prevention drug approved

On May 17, the Food and Drug Administration (FDA) approved the first-ever migraine preventive drug. Often referred to as a CGRP (calcitonin gene-related peptide) or CGRP inhibitor, the drug blocks the CGRP receptor that is believed to play a role in migraine.

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Melissa Dwyer, who took her own life at age 22 due to chronic migraine disease, is among the stories highlighted.

The INvisible Project: Migraine second edition was published at the end of May, just in time for the start of Migraine and Headache Awareness Month. The magazine features the stories and photos of 10 individuals living with migraine and headache disorders, building on the first INvisible Project: Migraine edition that was released last year.

“We are so thrilled to once again highlight the challenges and triumphs of people living with migraine and headache disorder,” says Nicole Hemmenway, interim CEO of U.S. Pain. “This population is too often overlooked and undertreated.”

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