According to Tufts University, 37 percent of research sites do not meet their enrollment goals for scientific studies. But enrollment is critical to clinical research and uncovering potential treatment advances.
Jennie Latson, a 39-year-old from Houston, TX, has battled the pain and burden of migraine for more than 25 years. Her relentless quest to find relief led her to a clinical trial in August 2018, which changed her life.
June is Migraine and Headache Awareness Month (#MHAM)! A large percentage of our community lives with migraine and headache diseases, whether as the primary cause of their pain or a comorbidity.
Nationwide, headache and migraine diseases affect 47 million Americans. Despite their huge impact, these conditions are often overlooked and downplayed as “It’s just a headache.”
But we know it is far more than simply head pain. Headache and migraine diseases are complex, debilitating, and symptoms can affect your entire body.
In honor of Migraine and Headache Awareness Month, on June 24, Jaime Michele Sanders (aka The Migraine Diva) will lead a diverse panel of fellow INvisible Project participants in tackling the issue of health care disparities. Nim Lalvani (Executive Director of American Migraine Foundation), Isiah Lineberry (health policy exert and a caregiver for his wife and two daughters, who live with migraine), and LaQuinda Mccoy (a patient advocate for migraine and other diseases, and a former nurse) will share how discrimination and implicit bias has negatively impacted their access to appropriate medical treatment.
As part of CHAMP (Coalition For Headache And Migraine Patients), team members of U.S. Pain Foundation participated in RetreatMigraine: the 2020 Virtual Experience April 17-19. The weekend was originally planned for an in-person event, where 300 people living with migraine would meet for an educational conference in Redondo Beach, CA. As a result of COVID-19, the retreat has been postponed.
Despite the change in plans, CHAMP recognized the need for the migraine community to connect, learn, and lift each other up during this time, and pivoted to host RetreatMigraine as online series of educational events and discussions. During the original three days scheduled for the in-person event, interactive online content was offered for all to partake in via Facebook Live. Special content was provided for those who were planning on attending the in-person retreat.
Have you ever wanted to find a way to better communicate with your doctor, get the most out of your visits, and maximize your treatment plan?
If yes, please join us this Thursday, June 13, at 7 pm EST for an intimate conversation between neurologist and headache specialist Abby Chua, DO, and patient advocate Katie Golden. Dr. Chua and Katie will discuss what patients and doctors can learn from one another, and offer tips for interacting.
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Contact: Nicole Hemmenway at firstname.lastname@example.org
Middletown, CT (June 1, 2019)– In time for Migraine & Headache Awareness Month, U.S. Pain Foundation has released its third edition of the INvisible Project focusing on headache and migraine diseases. The publication depicts the reality of life with pain, and why people living with headaches diseases need and deserve more help, treatment options, and research. It also serves as an inspiration to those living with the disease, offering hope and resources.
Migraine, headache, and cluster diseases affect more than 38 million Americans. To increase understanding and empathy for those with these disorders, U.S. Pain Foundation and CHAMP (the Coalition For Headache And Migraine Patients) need your help during National Migraine & Headache Awareness Month (#MHAM). The theme this year is #SowingtheSeeds.
MHAM began June 1, so jump in as soon as you can! You can get involved in the following ways:
By Jorie Logan-Morris and Jeannette Rotondi
Every year in February, advocates for migraine and headache disease come together in Washington, D.C., for an event known as Headache on the Hill (HOH). HOH is organized by the Alliance for Headache Disorders Advocacy (AHDA) and has been running now for 12 years.
During HOH, advocates of all kinds — migraine and headache patients, caregivers, doctors and specialists, and more — work together to lobby and meet with Congress, presenting important legislation and “asks” related to migraine and headache disease in hopes that lawmakers will support our requests. This in turn helps bring more national awareness to migraine and headache disease and ultimately further supports the millions who suffer all across the country.
While National Migraine and Headache Awareness Month (MHAM) wrapped up in June, U.S. Pain Foundation is continuing to raise awareness through its traveling display of the INvisible Project: Migraine second edition. Below is a photo recap of June and the ongoing efforts to bring about change for people living with headache and migraine disease.
It’s National Migraine and Headache Awareness Month (MHAM), and we have a number of exciting developments to kick it off, as well as numerous ways to participate. Be sure to follow U.S. Pain on Facebook and Twitter to stay up to date on the latest news, events, and ways to get involved.
First-ever migraine prevention drug approved
On May 17, the Food and Drug Administration (FDA) approved the first-ever migraine preventive drug. Often referred to as a CGRP (calcitonin gene-related peptide) or CGRP inhibitor, the drug blocks the CGRP receptor that is believed to play a role in migraine.