U.S. Pain was one of several organizations to sponsor 30 families with children with chronic pain to attend the 2019 Pediatric Pain Family Camp at The Center for Courageous Kids in Scottsville, KY. The center is specially designed for kids with serious illnesses, offering activities for children with different abilities and an on-site medical center staffed by a full-time doctor.
The campers came together from all across the country July 21 through 25 to enjoy activities like fishing, boating, arts and crafts, and more. Most important, kids and family members had the opportunity to be with others who understand the challenges of living with pain.
Kids who live with chronic pain have same desire as anyone else their age: to feel understood, connected, and supported. Attendees at the second Pediatric Pain Warriors retreat, held over Memorial Day weekend in San Antonio, TX, experienced all this and more. The retreat included 90 kids with pain and their family members. (View a slideshow from the weekend.)
The weekend kicked off with a welcome dinner, which included a surprise visit from former Los Angeles Chargers linebacker Charmeachealle (Mike) Moore. On Saturday, children and their family members were treated to an education day with speakers covering topics from virtual reality for pain to medication safety. On the final day of the weekend, everyone headed to Morgan’s Wonderland, a handicapped-accessible theme park, for some well-deserved fun in the sun. Founded in 2010, the park admits anyone with a special need free of charge, no questions asked.
Photos courtesy of Shawn Dickens.
For immediate release
Contact: Casey Cashman at 908-442-3257 or firstname.lastname@example.org
San Antonio, TX (May 20, 2019)—Childhood is supposed to be carefree. But for the millions of kids navigating the challenges of living with painful conditions like fibromyalgia or juvenile arthritis, that’s not necessarily the case.
To help support children with chronic pain and their families, on May 24 to 27, the U.S. Pain Foundation will host its second Pediatric Pain Warriors Retreat at Morgan’s Wonderland in San Antonio, TX.
Our second Pediatric Pain Warrior retreat is quickly approaching, and registration is open. The retreat will be held at the ultra-accessible fun park, Morgan’s Wonderland. Morgan’s Wonderland is located in San Antonio, TX, and is specially designed for people of all abilities. The retreat will be held May 24-26.
“Our goal is to bring young people living with pain and their families together, to educate them, and help them connect to other pain warriors and their families,” says Director of Pediatric Pain Warrior Program, Casey Cashman. Cashman continues saying, “Morgan’s Wonderland provides the perfect opportunity to our pain warriors to enjoy their weekend without the barriers they normally face.”
We are delighted to share the dates and location of the next Pediatric Pain Warrior weekend retreat: May 24-26 at Morgan’s Wonderland in San Antonio, TX.
Morgan’s Wonderland is an ultra-accessible family fun park with rides and activities for kids of all ages and abilities. Like with the inaugural 2018 retreat, the weekend will bring together children with pain and their families for a weekend of education, support, and fun.
A new video about the Pediatric Pain Warrior retreat in Disney World is now available. Held last November, the weekend brought together 142 kids with pain and their family members from across the country. The event was the official kick-off of U.S. Pain’s new Pediatric Pain Warrior program, which is dedicated to the unique needs of children with chronic illnesses and their loved ones.
The video was created by Yellow Dog Productions and highlights the kids’ experiences and why the weekend mattered to them.
On Jan. 28 at 12 pm EST, the Pediatric Pain Warrior Program will host a webinar, “School accommodations: A parent’s guide,” to help parents and caregivers understand and advocate for their children at school.
The webinar will feature Mari Franklin, JD, an attorney specializing in children’s rights in the education system. Mari has experience with IEPs, 504s, and FAPE both professionally and personally–she has a daughter with Ehlers-Danlos syndrome.
High schooler to build on $100,000 raised for children with pain through basketball games Jan. 24 & 29
Tyler raises funding by asking sports fans to pledge donations based on the number of points their team scores. In the last four years, he has raised more than $100,000. For his hard work, in 2017, Tyler received an award and $10,000 grant from the New York Yankees as part of HOPE Week.
While the focus of Points for Pain is fundraising, it’s also a great chance to raise awareness about pediatric pain. At the beginning of each game, Tyler explains the challenges these children faces and why support is so important.
Tyler established the program in honor of his mom, Casey, who lives with chronic pain. He witnessed her work with U.S. Pain Foundation, the leading nonprofit for children and adults with chronic pain, and wanted to help. Together, he and Casey collaborated with U.S. Pain Foundation to create the Pediatric Pain Warrior Program.
Unfortunately, Tyler is no stranger to chronic illness himself: He lives with a condition that is causing him to gradually lose his vision. But even his own personal challenges can’t get in the way of his dedication to helping others through Points for Pain.