We are delighted to share the dates and location of the next Pediatric Pain Warrior weekend retreat: May 24-26 at Morgan’s Wonderland in San Antonio, TX.
Morgan’s Wonderland is an ultra-accessible family fun park with rides and activities for kids of all ages and abilities. Like with the inaugural 2018 retreat, the weekend will bring together children with pain and their families for a weekend of education, support, and fun.
A new video about the Pediatric Pain Warrior retreat in Disney World is now available. Held last November, the weekend brought together 142 kids with pain and their family members from across the country. The event was the official kick-off of U.S. Pain’s new Pediatric Pain Warrior program, which is dedicated to the unique needs of children with chronic illnesses and their loved ones.
The video was created by Yellow Dog Productions and highlights the kids’ experiences and why the weekend mattered to them.
On Jan. 28 at 12 pm EST, the Pediatric Pain Warrior Program will host a webinar, “School accommodations: A parent’s guide,” to help parents and caregivers understand and advocate for their children at school.
The webinar will feature Mari Franklin, JD, an attorney specializing in children’s rights in the education system. Mari has experience with IEPs, 504s, and FAPE both professionally and personally–she has a daughter with Ehlers-Danlos syndrome.
High schooler to build on $100,000 raised for children with pain through basketball games Jan. 24 & 29
Tyler raises funding by asking sports fans to pledge donations based on the number of points their team scores. In the last four years, he has raised more than $100,000. For his hard work, in 2017, Tyler received an award and $10,000 grant from the New York Yankees as part of HOPE Week.
While the focus of Points for Pain is fundraising, it’s also a great chance to raise awareness about pediatric pain. At the beginning of each game, Tyler explains the challenges these children faces and why support is so important.
Tyler established the program in honor of his mom, Casey, who lives with chronic pain. He witnessed her work with U.S. Pain Foundation, the leading nonprofit for children and adults with chronic pain, and wanted to help. Together, he and Casey collaborated with U.S. Pain Foundation to create the Pediatric Pain Warrior Program.
Unfortunately, Tyler is no stranger to chronic illness himself: He lives with a condition that is causing him to gradually lose his vision. But even his own personal challenges can’t get in the way of his dedication to helping others through Points for Pain.
the pediatric second edition
U.S. Pain is excited to announce a new program, Pediatric Pain Warriors, dedicated to serving kids with pain and their families. The program will consist of additional pediatric editions of the INvisible Project, pediatric-focused educational events like Take Control of Your Pain Days, support groups, weekend retreats, scholarships to attend a summer camp designed for kids with chronic conditions, and online resources.
Derek Kilpatrick, Tyler’s brother, started a walk at their school, to raise awareness for his brother. Tyler was diagnosed with reflex sympathetic dystrophy (RSD), in his leg. “I wanted to do something to help get my brother back and make sure he knew I was always there to support him in any way I could,” says Derek.
Thus began the fundraiser, “Queens Knocks Out RSD.” Over the past two years J.H.S. 194 has raised close to $20,000 for the U.S. Pain Foundation’s Pediatric Pain Warrior Program, which benefits children living with painful conditions through awareness campaigns, support services and other efforts.
“I couldn’t be more proud of the Kilpatrick’s and J.H.S. 194 for their partnership in raising awareness and all of their support to the U.S. Pain Foundation,” says Paul Gileno, president and founder of U.S. Pain. “Together, we are making a difference for these children, helping to ensure that these kids know they have a support system while at school.”
For more information or to donate to Queens Knocks Out RSD, click here.