On May 15, U.S. Pain’s bimonthly webinar featured Jenni Grover, also known as ChronicBabe, who has dealt with fibromyalgia and other health issues for over 20 years. Through ChronicBabe.com, she has helped thousands of women cope with their own chronic pain. (Grover is also an editorial consultant with U.S. Pain’s INvisible project and a longtime patient advocate.)
Her recent book, “Chronic Babe 101: How to Craft an Incredible Life Beyond Illness,” is a collection of resources about “how to kick butt despite chronic pain.” In the webinar she spoke specifically about a chapter on acceptance, part of the “grieving process” that is hard to get past when dealing with chronic health issues. Acceptance isn’t a loss or defeat, she explained, and viewing it as a war to be won means seeing your body as the enemy.
The mobile pain management app, Ouchie, is offering a unique opportunity for U.S. Pain Foundation volunteers. This free app, which is available for iOS and Android, gives people living with pain access to valuable resources, a supportive community, and tracking tools, and then rewards them for daily accomplishments. By selecting that you are a U.S. Pain volunteer, you can unlock even more milestones to win Amazon gift cards.
U.S Pain’s next webinar for volunteers and members interested in volunteering will be held Nov. 21 at 1 pm, EST. The webinar will feature an informational presentation, “How to talk about pain so your doctor will listen,” given by Diane Cleverly, PhD. Cleverly has 20 years of medical communications experience and is the founder of Concierge Conversations, a coaching service that helps teach patients and providers how to better communicate with one another.
Each day during Pain Awareness Month, U.S. Pain will post a different “challenge”or task on social media for its followers. Most challenges take just a few minutes to complete from the comfort of your home. This year’s challenge features fun engagements, new resources, special promos, and even a giveaway. To join in, like us on Facebook and follow us on Twitter.
Here’s a preview of each day’s theme:
On July 18, U.S. Pain Foundation hosted its first webinar specially designed for ambassadors and advocates.
The webinars will be held every two months on the third Tuesday of the month at 1 pm EST. Lasting about an hour, they feature updates from key staff followed by a presentation from an outside expert, with topics ranging from how to appeal an insurance denial to better communicating with your clinician.
Now more than ever, chronic pain deserves awareness. U.S. Pain staff are excited to see how pain ambassadors, advocates and volunteers will apply themselves to help make Pain Awareness Month (PAM) a success this September. The goal of PAM is to raise awareness and provide educational resources for individuals living with chronic pain.
“Our volunteers are the reason we are able to make an impact on the pain community,” says Lori Monarca, co-director of Ambassador Program, who coordinates the ambassador program along with Jaclyn Drexel, also co-director of Ambassador Program. “Your hard work and dedication will provide the necessary fuel to launch this cause into the spotlight.”