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Belleville, Illinois, March 12, 2019 (GLOBE NEWSWIRE)Allsup, the nation’s premier disability representation company, is participating with the U.S. Pain Foundation to present an online seminar called, “Navigating Employment Challenges and When to Apply for Social Security Disability,” on Tuesday, March 19. The webinar provides an overview on assessing chronic pain’s effects and the ability to work, making choices about work and finances, working with medical providers, understanding eligibility for Social Security Disability Insurance (SSDI), and applying for SSDI with chronic pain conditions.

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Did you know that pain is the leading cause of long-term disability in America? During a webinar on March 19, we’ll be talking about the challenges of working with chronic pain and considerations for applying for Social Security Disability Insurance (SSDI). Our featured speaker is Rebecca Ray of Allsup, one of the leading national providers of SSDI representation.

Through the webinar, you’ll learn about:

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Navigating school systems on your child’s behalf can be overwhelming and confusing.

On Jan. 28 at 12 pm EST, the Pediatric Pain Warrior Program will host a webinar, “School accommodations: A parent’s guide,” to help parents and caregivers understand and advocate for their children at school.

The webinar will feature Mari Franklin, JD, an attorney specializing in children’s rights in the education system. Mari has experience with IEPs, 504s, and FAPE both professionally and personally–she has a daughter with Ehlers-Danlos syndrome.

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On Jan. 31, U.S. Pain Foundation’s Advocacy Network will host a free training session for existing advocates and interested volunteers to learn what it means to be a patient advocate.

Attendees will learn about issues impacting Americans with chronic pain and what patient advocacy really means.

Those who register will also learn about:

  • How decisions are made at the state and federal level
  • Building relationships with lawmakers
  • Various ways to advocate
  • Why sharing patient stories matter

To register, click here.

Learn more by watching a video here.

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Kids with pain have unique obstacles, and they deserve unique support. With this in mind, the 2018 theme for U.S. Pain’s annual KNOWvember campaign was pediatric pain. The month included daily facts on social media and four special webinar events.

Recordings of each event are now available via the links below. You can watch them at any time.

Cannabis and Children: Navigating Parents Through Stigma
Ellen Lenox Smith

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A recording is now available of U.S. Pain Foundation’s Nov. 26 panel discussion, “Chronic pain and the risk of suicide: A staggering crisis and what to do about it.”

The event was prompted by a study published this September in the Annals of Internal Medicine, which found that more than 10 percent of suicide cases in the United States involve chronic pain. Panelists discussed reasons behind this statistic, offer tips for coping with the mental health challenges pain creates, and gave suggestions for how clinicians and caregivers can help.

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According to a study published this September in the Annals of Internal Medicine, more than 10 percent of suicide cases in the United States involve chronic pain. We have long known that people with pain are more likely to struggle with depression, anxiety, and suicidal ideation–on top of physical suffering. But this number is staggering, and indicates the need for more awareness around the degree of despair pain can cause.

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Volunteers who have signed up to join the Advocacy Network joined an invitation-only training webinar to learn about an issue impacting families and individuals across the country: surprise bills.

The presentation was the first of a series of advocacy training webinars scheduled for the upcoming year, according to Director of State Advocacy and Alliance Development, Shaina Smith. “We’re really trying to develop and offer resources that will improve the lives of people with chronic illness through education,” Smith explains. “The more we learn as a community, the greater chance we will have at successfully moving patient-friendly policies forward.”

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Each November, U.S. Pain offers a month-long educational campaign to provide helpful information and resources to people living with pain and their caregivers. In honor of the young individuals who have had to find their new “normal” at an early age, U.S. Pain Foundation is dedicating this year’s KNOWvember campaign to pediatric pain warriors.

Children with pain and their families face a unique set of challenges. To help them navigate these challenges, U.S. Pain will provide daily social media facts throughout the month and the chance to interact leading experts in the pediatric pain arena through several webinars.

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Medical research is essential to advancing pain care. On Sept. 25, U.S. Pain members were treated to a webinar covering the ins and outs of medical research studies. The event, “Patient empowerment in clinical trials,” was presented by Lindsay Wahlstrom-Edwards, Director of Partnerships at Antidote, a digital health company that helps connect patients with clinical trial opportunities.

During her talk, Wahlstrom-Edwards explained the different types of clinical research and key terms, like “protocol” and “principal investigator.” She also talked about the importance of engagement. According to Wahlstrom-Edwards, approximately 80 percent of medical research is delayed or cancelled due to difficult enrolling participants.

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