Each November, U.S. Pain offers a month-long educational campaign to provide helpful information and resources to people living with pain and their caregivers. In honor of the young individuals who have had to find their new “normal” at an early age, U.S. Pain Foundation is dedicating this year’s KNOWvember campaign to pediatric pain warriors.
Children with pain and their families face a unique set of challenges. To help them navigate these challenges, U.S. Pain will provide daily social media facts throughout the month and the chance to interact leading experts in the pediatric pain arena through several webinars.
By Anne M. Smith, owner of Travel & Events Extraordinaire and a U.S. Pain ambassador
When I was first bombarded with multiple pain conditions nine years ago, I was completely overwhelmed, and there are still days when it tries to overtake me. As a travel agency owner and event manager, I have had to completely restructure my life, my business and, more importantly, the way I travel.
To understand the difficulties I face, you can think of my nervous system wiring as being totally rerouted. It is akin to a highway construction manager putting up detour signs for my nerves all throughout my body—they are confused with which exit to take. So, they have gone haywire, leaving central nervous sensitization in its path and my pain receptors are all on high alert. Couple that with referring pain and we have a map of tangled highways, streets, and roads going around in an endless cloverleaf exit ramp.
By Jahan Marcu, Ph.D., Chief Science Officer for Americans for Safe Access
With over 100,000 active members in all 50 states, Americans for Safe Access (ASA) is the largest national member-based organization of patients, medical professionals, scientists, and concerned citizens promoting safe and legal access to cannabis for therapeutic use and research.
ASA works to overcome political and legal barriers by creating policies that improve access to medical cannabis. One method is to share the facts when it comes to research.
Each year, U.S. Pain engages in a month-long educational campaign aimed at providing helpful information and resources to people living with pain and their caregivers. To honor the young pain warriors who have had to find their new “normal” at an early age, U.S. Pain Foundation is dedicating this year’s KNOWvember campaign to pediatric pain warriors.
Through virtual offerings such as webinars, Twitter chats, and Facebook live events, along with daily facts, the pain community will be given the chance to engage with leading experts, nonprofit organizations, children with chronic illness, and others passionate advocates.
#PainWarriorsUnite was one of U.S. Pain’s most successful Pain Awareness Month campaigns to date! Ambassadors, advocates, and volunteers worked hard all month to create awareness on behalf of pain warriors across the country. Initiatives included the 30-Day Social Media Challenge, Daily Partner Pain Facts, proclamations, Light up the Landmarks, Beautify in Blue, awareness tables, fundraisers, and educational webinars.
U.S. Pain Foundation’s Director of State Advocacy and Alliance Development Shaina Smith has been appointed to serve on a pain management design group put together by Connecticut’s Office of Health Strategy (OHS).
The Primary Care Modernization initiative is intended to enable primary care providers to expand and diversify their care teams and provide more flexible, non-visit-based methods for patient care, support, and engagement. The design process will result in a proposed program model that details new care delivery capabilities for Connecticut’s primary care practices and payment model options that support those capabilities.
The Senate and House have agreed to a compromise opioid bill HR 6, the SUPPORT Act, which has passed the House and is expected to pass the Senate this week and be signed into law by the President. This is the second big piece of legislation Congress has created to address the opioid crisis, with a total of 660 pages.
“The bill does include a number of positive provisions from a pain management perspective, but also continues a troubling pattern in recent legislation of penalizing the use of opioids for legitimate pain management,” said Cindy Steinberg, U.S. Pain National Director of Policy and Advocacy.
U.S. Pain’s educational resource website, Learn About Your Pain, has begun an update to provide more comprehensive information and support. As part of that update, the website will include additional patient resources, including videos from experts in the field and from patients living with the condition. The website’s re-boot has been made possible with a grant from Germany-based pharmaceutical company, Grunenthal.
The U.S. Department of Health and Human Services (HHS) Pain Management Best Practices Task Force convened its second public meeting on Sept. 25 and 26 in Washington, DC.
“The main purpose of the meeting was for the three task force subcommittees to present a high-level summary of their recommendations arrived at through working sessions held every week since the end of May,” says Cindy Steinberg, a task force member and U.S. Pain’s National Director of Policy and Advocacy. “Other goals were to hear input from high-level officials representing stakeholder government institutions, including HHS, Congress, the Centers for Medicare and Medicaid Services, the National Institutes of Health, the Department of Veterans Affairs, the Indian Health Service, and the Department of Defense. The task force also heard from the U.S. Surgeon General, patients living with chronic pain, and members of the public.”