Now at the age of 75, even after years of living with Ehlers-Danlos syndrome, I still get embarrassed and disappointed...
Blog Articles
Know Someone With Pain? Check in With Them Today
Recently, while I was having a rougher day with my condition, called Ehlers-Danlos syndrome, I had this unwanted and...
Why Holidays Bring on Anxiety: Living with Chronic Pain
Those of us who live with chronic pain don’t always approach a holiday with the same enthusiasm as others. I struggle...
Happiness can be Medicine for the Soul
Happiness is such a joy and medicine to the soul as I navigate life with chronic pain. For me, it can range from...
Join Us As We Tell Congress #WhyPainCounts!
Today, July 23, we are urging policymakers to support the Advancing Research for Chronic Pain Act, S.2922/H.R.7164,...
52 families connect, explore, grow at 3rd Annual Pediatric Pain Warrior Family Summer Camp
This summer, children and teens living with chronic pain reached the top of a rock wall, traversed a ropes course,...
My Story: Why I Am So Passionate About Alternative Pain Treatments
From Young, Healthy, and Active to Disabled In 1977, I was 25 years old and attending graduate school, working towards...
Adjusting to Life with Chronic Pain
My heart breaks when I meet a young person sharing that they are confronting life with chronic pain. At the age of 74,...
Should I Consider Having A Service Dog?
Have you ever wondered about the advantages of having a service dog? If you are living with a difficult medical...
Uninformed Comment in the ER Highlights Need for Self-Advocacy
What would you do if your refuge, a place where you went to be cared for, suddenly became a place where you were...
Winter Snowstorms Create Mobility Challenges
When I was growing up, excitement was in the air as a snowstorm approached. The wooden slat sleds were retrieved and...
Tips I Have Personally Found Helpful To Control Inflammation and Reduce Pain
No matter what painful condition you are living with, issues with inflammation can be common and, in turn, can add to...