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From Overlooked to Understood: Why Research Must Reflect Real Lives

Every November, the U.S. Pain Foundation brings our community together to spotlight something powerful: knowledge.  We call it KNOWvember—a month-long campaign amplifying a theme that matters deeply to the pain community. This year, we’re focusing on an area that has...

Kelly Amspacher

Experiment Today, Hope Tomorrow: Engaging in Migraine Studies

Reggie Barnes

When Relief Requires Research: From Patient to Advocate

Monica Thomas

Asking Questions, Finding Hope: The Impact of Avid Study Participation

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Turning Your Pain Into Purpose

Turning Your Pain Into Purpose

We all face adversity at some point(s) in our lives. For many of us, the first thing we do is feel awful. That’s understandable. But what can you do after that? Can we learn to see our pain as it leads us into a new passion, project or even a more...

The Waiting Game: Unsettling booking delays

The Waiting Game: Unsettling booking delays

I am almost 73 years old and live with multiple medical complexities. When you discover measures are available to improve or even possibly sustain life, any delays receiving those measures can create tremendous added stress and anxiety. I have...

Lost and Found

Lost and Found

In 2006, two years after being diagnosed with a condition I had actually been born with called Ehlers-Danlos Syndrome, I wrote a poem (below) to establish some grounding and normalcy in my life. It had been a long, unacceptable wait to finally...

2022 annual report is now available

2022 annual report is now available

Chronic pain is vastly under-recognized, underfunded, and under-treated when considering its significant impact on American lives. Research, treatment options, and support for those affected individuals still lag behind other major diseases.  This...

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