Living with chronic pain can feel impossible to describe. And it can be truly difficult to make others understand what...
Blog Articles
Lonely Hearts: A Poem
By Molly Kamper “Kings depend on lonely hearts to trust their gilded lies.”* How do you get a Lonely Heart? By...
More Than Tired: The Exhaustion of Living With Pain
By Nikhil Sadavarte I fell to the pillow. I was exhausted. It had been a long day and a long shift at work. My eyes...
5th Family Summer Camp Gathers 60+ Families Navigating Pediatric Pain
The fifth-annual Pediatric Pain Warrior Family Summer Camp brought together a record number of families for a...
I Asked for Water—And Got So Much More
By Kari McBride It started with a quiet “Hmmph” and crossed arms. Then came the audible signs of frustration....
Federal Legislation Introduced: Better Pain Data for Better Treatments
In an important step forward for the chronic pain community, the bipartisan Advancing Research for Chronic Pain Act...
When Acceptance Isn’t Giving Up
By Kari McBride It was the phone call from the school nurse’s office that triggered a chain reaction. On the other end...
Storms Bring a Painful Reminder of Our Disability
Living with a progressive, painful condition is a challenge, to say the least. I have learned that if I try to focus...
Growing Beyond the Lines I Thought Pain Drew: What Leading a Daily Support Group Has Taught Me
By Michele Rice Living with chronic pain has a way of quietly drawing lines around your life. Some of those lines are...
It’s Only One Mile: What I’ve Learned About Pacing
By Kari McBride “It’s just one mile. If you pace yourself, you can improve your time.” It was my freshman year in high...
New EDS Patient: Where Do I Begin?
Did you recently get diagnosed with Ehlers-Danlos syndrome (EDS), and feel overwhelmed and confused about where to...
Learning to Savor the Small Moments
By Kari McBride I remember my daughter’s first steps like they were yesterday. After 18 months of appointments,...