By Kari McBride “It’s just one mile. If you pace yourself, you can improve your time.” It was my freshman year in high...
Blog Articles
New EDS Patient: Where Do I Begin?
Did you recently get diagnosed with Ehlers-Danlos syndrome (EDS), and feel overwhelmed and confused about where to...
Learning to Savor the Small Moments
By Kari McBride I remember my daughter’s first steps like they were yesterday. After 18 months of appointments,...
Dive into Innovative Pain Science at 3 Leading Universities
By Kirsten Ellis Pain research is growing in leaps and bounds—with educational institutions playing a key role. Hear...
Dismantling Disparities in Pain Research
By Ashley Hattle When you pick up your medication or see a pain specialist, you want the best possible care. But what...
Innovative Pediatric Pain Research: The TRAC-Pain Study
By Mariah Z. Leach Aiden Pratt and his mom, Katie Pratt. When Aiden Pratt was in seventh grade, he fell and hurt his...
Explore Efforts to Engage Patients as Research Partners
By Ashley Hattle When research views individuals with pain as data points on a graph or medical curiosities, clinical...
Patient Registries: Communities Steering Modern Research
By Julia Daye The last decade has seen a boom in patient registries—databases that collect voluntary information from...
Measuring an Invisible Experience: Understanding Pain Scales—And Their Limitations
By Samantha Kahn Providers and researchers routinely ask patients: “On a scale from 0 to 10, how would you rate your...
No Stone Unturned: How to Navigate Clinical Trials
By Rebecca McKinsey Lindsey Wahlstrom and her daughter, Rona Edwards, during one of the clinical trials they...
7 Tips for Bringing up Trials with Your Doctor
By Tom Norris For those of us living with chronic pain, being overlooked is part of the experience. But your voice...
The Role of an IRB: Safeguarding Research Participants
By Kirsten Ellis Studying pain—or conducting any type of research involving people—requires a system of checks and...