Kids with pain have unique obstacles, and they deserve unique support. With this in mind, the 2018 theme for U.S. Pain’s annual KNOWvember campaign was pediatric pain. The month included daily facts on social media and four special webinar events.
Recordings of each event are now available via the links below. You can watch them at any time.
Cannabis and Children: Navigating Parents Through Stigma
Ellen Lenox Smith
Last weekend, more than 125 kids with chronic pain and their families traveled from across the country for the first-ever Pediatric Pain Warrior retreat in Disney World. The event was the official kick-off of U.S. Pain’s new Pediatric Pain Warrior program, which is dedicated to the unique needs of children with chronic illnesses and their loved ones.
The weekend included plenty of opportunities for fun, like dinner with Mickey Mouse and a scavenger hunt, but the focus was education and empowerment. Saturday featured a full day of presentations ranging from the importance of talking about pain and sharing your story to tips for living with common pain conditions, like Ehlers-Danlos syndrome and complex regional pain syndrome. The retreat also celebrated the release of the INvisible Project: Pediatric second edition, which will be available online in the coming weeks.
Each November, U.S. Pain offers a month-long educational campaign to provide helpful information and resources to people living with pain and their caregivers. In honor of the young individuals who have had to find their new “normal” at an early age, U.S. Pain Foundation is dedicating this year’s KNOWvember campaign to pediatric pain warriors.
Children with pain and their families face a unique set of challenges. To help them navigate these challenges, U.S. Pain will provide daily social media facts throughout the month and the chance to interact leading experts in the pediatric pain arena through several webinars.
Each year, U.S. Pain engages in a month-long educational campaign aimed at providing helpful information and resources to people living with pain and their caregivers. To honor the young pain warriors who have had to find their new “normal” at an early age, U.S. Pain Foundation is dedicating this year’s KNOWvember campaign to pediatric pain warriors.
Through virtual offerings such as webinars, Twitter chats, and Facebook live events, along with daily facts, the pain community will be given the chance to engage with leading experts, nonprofit organizations, children with chronic illness, and others passionate advocates.
Psychologist Jenna Krook, MS, offers advice on how to become your child’s best advocate.
Dear fellow parents,
Our journey started seven years ago when our son was diagnosed at 10 years old with reflex sympathetic dystrophy (RSD). This mysterious and debilitating condition was overwhelming—it became the center of our lives.
Being an advocate for a sick child is a difficult role. When you face a condition as misunderstood and overwhelming as RSD, finding the time and resources to discover and advocate for treatment and intervention is a challenge. Learning what will work for your child takes time, and there is no quick answer.
U.S. Pain was one of several organizations to sponsor 58 children with chronic pain and their families to attend Pediatric Pain Camp at The Center for Courageous Kids, a facility in Scottsville, KY, that offers summer camp programming for kids with serious illnesses. The camp provides activities suitable for children with different abilities and offers an on-site medical center staffed by a full-time doctor.
Sadie Peek, one of U.S. Pain’s pediatric pain warriors, is proof that one young person really can have an impact on the world. Last year, as a junior at St. Bernard School in Uncasville, CT, she had a great idea: setting up a fundraiser for U.S. Pain that would allow classes to compete against each other—even undermine each other—to raise donations. “Penny Wars on Pain” was born.
“Penny Wars on Pain” uses a novel approach to raising money. Like many other fundraisers, there’s a prize for the class that raises the most money (in this case, the winners celebrated with a donut party); unlike most other fundraisers, there’s an element of sabotage in play. The challenge’s basis is to raise the greatest amount of money using the smallest possible denominations of coins. Each class has a donation box, and each penny added by a student is a positive point for his or her class. The twist is that students then can sabotage the other classes by dropping denominations larger than a penny into other classes’ bins, which counts for negative points for the class receiving them. For instance, if you drop $1? That’s negative 100 points.
U.S. Pain is excited to announce a new program, Pediatric Pain Warriors, dedicated to serving kids with pain and their families. The program will consist of additional pediatric editions of the INvisible Project, pediatric-focused educational events like Take Control of Your Pain Days, support groups, weekend retreats, scholarships to attend a summer camp designed for kids with chronic conditions, and online resources.
U.S. Pain Foundation is proud to announce it will officially launch a Pediatric Pain Warrior Program in 2018.
“This program’s goal is to ensure that no child feels like he or she is fighting this journey alone,” says Paul Gileno, president and founder of U.S. Pain. “To do that, we will provide resources for the pain warrior as well as his or her family, offer support online as well as in-person, give families a safe and secure place to share stories, and keep the community up-to-date on events and awareness campaigns.”